Wow, where has the time gone? I can honestly ask that since the past month and a half have flown by...it seems ever since I finished my treatment, time is just escaping me, scary isn't it?
I'd like to start by saying I'm sorry I didn't do this entry sooner to wish everyone a Merry Christmas! Ours was fun, the boys had a blast and we had a great visit with Dave's family. Yup, 17 of them here on Saturday! It was so nice though, to be healthy and enjoy everyone's company. The last time they were all here at our house was right before Dave started his chemo, over 16 months ago...so, this time it was nice that we all felt good and could just see how far we've come since they visited with us last!
I still can't believe that 2010 is just about a day and a half away...where did this last decade go? Oh my, so much has happened over the past 10 years, and we made it through pretty unscathed. Dave and I have SO MUCH to be thankful for and we don't take any of it for granted. It's mind boggling to process everything that has transpired, but at the same time, it's neat to see where we are now, who we are and how things have worked out. I know we've met some pretty awesome people, especially in the past year and a half, and I look forward to all those people that will be brought into our paths in the future.
I'll touch base via the blog every once and a while to keep you up-to-date. My next visit with the Oncologist is in March (after my next mammogram in February) so I know I'll put a post up before that...I don't want to take for granted the ability to write, put my thoughts down, have somewhere to share what my journey has been like. This blog has been very therapeutic and I'm thankful for this outlet.
I hope and pray that you all have a very Happy, Healthy, Prosperous New Year! God Bless!
Wednesday, December 30, 2009
Thursday, November 12, 2009
Great News! (besides the kitchen being done!)
I'm adding these pictures so you can see our kitchen makeover...2 of the new and one of the old...but that's not the great news...keep reading!
Yes, it's been a while and I hope this finds all of you well. It's been about 3 1/2 weeks since I finished up with my Radiation and I cannot complain at all! So much to be thankful for this year, especially with Thanksgiving right around the corner! Wow, this year has just FLOWN by, quicker than most for us!
Today I got results from a genetic test (BRAC analysis) and the results were NEGATIVE!! This is huge...my GYN suggested I have the test done since I've had Breast Cancer and I'm under 50 years old. Even though I don't have daughters, if the results were positive, it could affect my sister and Mom. Anyway, the tests shows if there is a genetic predisposition for cancer and if there'd be a chance for me to get ovarian or uterine cancer down the road. I was so relieved to hear that the results were negative, awesome, awesome, awesome!
Dave also had his 3-month CT scan today and everything looks GOOD!!! Thank God! Again, if you were to tell me a year ago of everything we would be going through, I would have said, "No WAY"...but I look back on it all and know that there's absolutely no way I could have made it through without God's grace and the support of all of you out there.
It's been interesting the last few weeks, getting out life back to a new "normal". I'm feeling better, more energetic, still sore and tight on my right side which I think I just need to accept that as how it'll be, but trying to get back to a life without cancer. One day at a time is still my mantra, focusing on my family and trying to get into a routine. It was actually easier for me to be disciplined and better organized when I was going through treatment, but don't worry, I'll get it figured out! I'm SO happy to have cancer behind me and look towards the future!
Monday, October 19, 2009
Do A Happy Dance with Me!!
Well, how do I describe how I feel? Elated, jumping with joy, ecstatic, my emotions are hard to contain right now to say the least! Today was my last radiation treatment and with that I say, "So Long Cancer!! And don't ever come back!!!"
Getting through the radiation was a snap. It got tedious just because of the disruption in my routine, but, besides that and some skin irritation, it wasn't bad at all. The folks that worked with me were wonderful so my parting today was bittersweet. It was great to have caring, nice people take care of me during my treatments, but I'm also glad I won't be seeing them on a daily basis.
So what happens now? Well, I follow up with my Radiation Oncologist in a month, to check out my skin and see how I feel. I see my Oncologist (in charge of the chemo), Dr. Landis, in February for a follow-up and I think that's about it. I'll have a bi-lateral mammogram done in February and I think every 6 months after that...we'll see what they tell me.
You know, after having Dave's cancer be diagnosed last July, his treatment from August through February, my diagnosis in February, our surgeries in March, my treatments from April until now, I haven't had a "normal" life in 15 months. So, I guess now I can get used to normal again...thank God! I'll probably go through some reflective, contemplative time about everything we've actually been through. It's pretty daunting to consider the implications of what we have endured and it's probably why I haven't taken the time to really dwell on it. I know with Dave I was in survival mode for so long and then when he finished his chemo, I was just starting to get my life back. Then, BAM, my diagnosis hit me in the face and that's what has consumed my thoughts and time until now...so, now back to being a Mom, wife, friend, and just Me.
I don't know where to start to thank so many friends and family for all the support we've received during these past 15 months. I know for a fact that we couldn't have made it without our network of friends, neighbors, family and just everyone who has lifted us up in prayer, been there to physically meet our needs and just really cared about our family during this time. So, again, my Thanks to all of you, you are amazing and I'm blessed to know that so many people really do care and love us.
I'm honored to have you all in my life and thank God for each and every day that I can touch others like I've been touched. I know that our battles with cancer have made us stronger people, and also just truly appreciative of each and every day we are here.
Getting through the radiation was a snap. It got tedious just because of the disruption in my routine, but, besides that and some skin irritation, it wasn't bad at all. The folks that worked with me were wonderful so my parting today was bittersweet. It was great to have caring, nice people take care of me during my treatments, but I'm also glad I won't be seeing them on a daily basis.
So what happens now? Well, I follow up with my Radiation Oncologist in a month, to check out my skin and see how I feel. I see my Oncologist (in charge of the chemo), Dr. Landis, in February for a follow-up and I think that's about it. I'll have a bi-lateral mammogram done in February and I think every 6 months after that...we'll see what they tell me.
You know, after having Dave's cancer be diagnosed last July, his treatment from August through February, my diagnosis in February, our surgeries in March, my treatments from April until now, I haven't had a "normal" life in 15 months. So, I guess now I can get used to normal again...thank God! I'll probably go through some reflective, contemplative time about everything we've actually been through. It's pretty daunting to consider the implications of what we have endured and it's probably why I haven't taken the time to really dwell on it. I know with Dave I was in survival mode for so long and then when he finished his chemo, I was just starting to get my life back. Then, BAM, my diagnosis hit me in the face and that's what has consumed my thoughts and time until now...so, now back to being a Mom, wife, friend, and just Me.
I don't know where to start to thank so many friends and family for all the support we've received during these past 15 months. I know for a fact that we couldn't have made it without our network of friends, neighbors, family and just everyone who has lifted us up in prayer, been there to physically meet our needs and just really cared about our family during this time. So, again, my Thanks to all of you, you are amazing and I'm blessed to know that so many people really do care and love us.
I'm honored to have you all in my life and thank God for each and every day that I can touch others like I've been touched. I know that our battles with cancer have made us stronger people, and also just truly appreciative of each and every day we are here.
Friday, October 9, 2009
Time Flies....
I know, I'm bad...I see that when things are going along smoothly I go quiet. So, I'm thankful things are going smoothly! So far I've had 27 of my 33 radiation treatments which makes me more than 2/3 of the way through. My skin doesn't like it at all, I've got burn marks on my collar bone and the rest of the area is turning sunburned, but that doesn't surprise me with my fair skin. I do put aloe on it a few times a day, along with the prescription cream the doctor is having me use, so I know I'll get this part of my treatment behind me too! I am so looking forward to being done, done, done. At least the side effects of chemo are behind me (except for my chemo nails), and I'm even starting to get some hair. Big surprise, it's a lot of white and gray with a little dark stuff, but that's what some good hair color will be for in the future. We'll see...right now I'm going without the bandanas and scarves and that in and of itself is very liberating. Hopefully my hair growth will multiply exponentially soon so I'll have some wavy locks to brush...I'm just thankful it's coming back in! I actually think my eyelashes are starting to grow back too, thank goodness! I've done a good job giving myself some eyebrows with my eyebrow pencil, but eyelashes are hard to fill in! It's all good though, seriously. Except for being a bit worn out from the radiation, I can't complain at all.
Dave and I were able to go to Knoxville a few weeks ago to see his parents and 2 of his 3 sisters, Barbara and Diane. It was such a nice weekend (minus the rain) because we were celebrating Dave's birthday which was Sept. 24th and his dad's 80th birthday which was Sept. 30th. Birthdays definitely are worth celebrating, even though we are all getting older, but after dealing with cancer, you just appreciate them more. We had a wonderful time with Dave's family and it was a great break from our routine here, we're thankful to have been able to make the trip.
Dave and I are celebrating our 22nd wedding anniversary tomorrow (10/10). This year I'm making sure we go out on a real date and enjoy each other's company. Last year he was in the hospital receiving chemo, so, I think we need to celebrate extra this year. We've been through so much and I know it's brought us closer, made us stronger. I'm so thankful that Dave is doing o.k. and that my treatment is almost over also, we have a lot to celebrate. I'm not sure where we're going yet, but I know we'll have a good time wherever we end up going.
Well, I think I'm going to say that this is all for now. I'm hoping that we can put a picture up here of my hair that's growing back...it's pretty exciting to have some hair back on my head! I'll keep updating those shots to show the progress of my new hair...part of getting my old life back!
Dave and I were able to go to Knoxville a few weeks ago to see his parents and 2 of his 3 sisters, Barbara and Diane. It was such a nice weekend (minus the rain) because we were celebrating Dave's birthday which was Sept. 24th and his dad's 80th birthday which was Sept. 30th. Birthdays definitely are worth celebrating, even though we are all getting older, but after dealing with cancer, you just appreciate them more. We had a wonderful time with Dave's family and it was a great break from our routine here, we're thankful to have been able to make the trip.
Dave and I are celebrating our 22nd wedding anniversary tomorrow (10/10). This year I'm making sure we go out on a real date and enjoy each other's company. Last year he was in the hospital receiving chemo, so, I think we need to celebrate extra this year. We've been through so much and I know it's brought us closer, made us stronger. I'm so thankful that Dave is doing o.k. and that my treatment is almost over also, we have a lot to celebrate. I'm not sure where we're going yet, but I know we'll have a good time wherever we end up going.
Well, I think I'm going to say that this is all for now. I'm hoping that we can put a picture up here of my hair that's growing back...it's pretty exciting to have some hair back on my head! I'll keep updating those shots to show the progress of my new hair...part of getting my old life back!
Saturday, September 19, 2009
It's been a while...
Once again time has slipped past me, I cannot believe that it's been almost two weeks since my last entry. I do apologize to those of you who do check this on a regular basis, I know it's refreshing to see a new entry every once and a while.
So, radiation has been going pretty smoothly. It's so much easier than chemo. I think all the rain that we've had here in Georgia this past week hasn't helped me any. I was definitely in a funk yesterday, a hormonal roller coaster, all of which I think is normal and certainly deserved. I really just want to be done with all this. I'm over it. I want my hair back, my nails back, to have my entire days without a doctors' appointment or a radiation treatment, to feel like myself again, to just be done. Is that too much to ask? I'm trying to keep things as "normal" as possible around here, but do I really know what normal is anymore? Like my sister said a while back, get used to the "new normal". Hmm, I don't think I like that!
I went back to the gym this week to start lifting weights again. I've never really been in great shape, but oh my, I can tell it's been since March when I last lifted weights. UGH!!! I'll stick with it though and get back in the routine, that's the best thing I can do right now. I am glad I've kept up the walking this whole time, but strength training is so important too. I remember a long time ago, a guy at a gym I belonged to told me, "Muscles have memory"...hopefully mine will cooperate and bounce back in no time! It's ok though, at least I can work out and have the flexibility in my schedule to get back into it. My hope is that by the time the holidays roll around, I'll have hair and can tell I've been working out a few months! We shall see.
The radiation is going very smoothly though. My hats off to the staff, they are some really nice folks at the office where I go and make my treatments worth the trip. At this point, I have had 12 of 33 so I'm just over 1/3 of the way through. My final treatment date is Oct. 19th, believe me, I've marked my calendar! My skin is doing o.k. so far...I have aloe I'm treating it with and am sleeping extra when I can. They do say fatigue is a side effect and I've definitely noticed I can't do as much (which is very frustrating for me)...I'll get through this though so I'll give myself some slack for not getting all the "stuff" done that I should. Oh, to be all done will be a dream!
Well, it's a big football day in our household today, Florida Gators (my school) vs. Tennessee Volunteers (Dave's school)...what can I say? Goooooooo Gatorssssssss!!!!!!
So, radiation has been going pretty smoothly. It's so much easier than chemo. I think all the rain that we've had here in Georgia this past week hasn't helped me any. I was definitely in a funk yesterday, a hormonal roller coaster, all of which I think is normal and certainly deserved. I really just want to be done with all this. I'm over it. I want my hair back, my nails back, to have my entire days without a doctors' appointment or a radiation treatment, to feel like myself again, to just be done. Is that too much to ask? I'm trying to keep things as "normal" as possible around here, but do I really know what normal is anymore? Like my sister said a while back, get used to the "new normal". Hmm, I don't think I like that!
I went back to the gym this week to start lifting weights again. I've never really been in great shape, but oh my, I can tell it's been since March when I last lifted weights. UGH!!! I'll stick with it though and get back in the routine, that's the best thing I can do right now. I am glad I've kept up the walking this whole time, but strength training is so important too. I remember a long time ago, a guy at a gym I belonged to told me, "Muscles have memory"...hopefully mine will cooperate and bounce back in no time! It's ok though, at least I can work out and have the flexibility in my schedule to get back into it. My hope is that by the time the holidays roll around, I'll have hair and can tell I've been working out a few months! We shall see.
The radiation is going very smoothly though. My hats off to the staff, they are some really nice folks at the office where I go and make my treatments worth the trip. At this point, I have had 12 of 33 so I'm just over 1/3 of the way through. My final treatment date is Oct. 19th, believe me, I've marked my calendar! My skin is doing o.k. so far...I have aloe I'm treating it with and am sleeping extra when I can. They do say fatigue is a side effect and I've definitely noticed I can't do as much (which is very frustrating for me)...I'll get through this though so I'll give myself some slack for not getting all the "stuff" done that I should. Oh, to be all done will be a dream!
Well, it's a big football day in our household today, Florida Gators (my school) vs. Tennessee Volunteers (Dave's school)...what can I say? Goooooooo Gatorssssssss!!!!!!
Sunday, September 6, 2009
Time for an Update!
Sorry it's been a while since I last made a post, I've been staying quite busy so that is good. Here's what's been going on since I last wrote...
Dave went to Costa Rica this past week on business. While he was gone, I went in for my Radiation Simulation on Monday..this is where they tattoo me, get me marked up with a Sharpie, line me up and get me ready for my upcoming Radiation. I then had my Port Removal surgery done on Tuesday and then started Radiation on Wednesday. On Tuesday, although the port removal was a simple procedure, it was not pain free. My surgeon told me I could drive myself to and from the appointment, but I'm glad my Mom came with me. All I can say is, "OUCHHHH!!!" He used a local anesthetic (or claimed to), but it was not a fun procedure. I'm just glad it is over and done with and out of me! The port was great to have during chemo, but since I didn't have any more need for it, I wanted it out!
Wednesday was my first Radiation appointment (of 33) and that is quite painless! I think like many have said that after going through chemo, the radiation will be a piece of cake. I get "zapped" from 3 different angles and the whole procedure takes about 10 minutes. No big deal, I'll just need to keep aloe on my skin since I am so fair and burn quite easily. They said that in about the third week that fatigue will probably kick in. I'm just glad I can rest and nap when I need to so, I'll get through it.
I was having nausea this week and figured out that it was from starting Tamoxifen. I read up on the side effects and it said that when starting on this "miracle drug", nausea can be a side effect at the beginning of treatment. I'll be on this for 5 years so I'm glad the nausea shouldn't be something permanent! This drug blocks the estrogen (which my type of breast cancer feeds off of), so it will help me not to have a recurrence. It also keeps me in chemically-induced menopause, so I continue to have hot flashes. I'm just dealing with them and taking off my bandana to keep cool! It goes with the territory so I won't complain although they are not the most fun thing to deal with. Such is life!
Well, not too much else is happening. Our kitchen remodel is just waiting on the painter to paint the walls, ceiling and cabinets, then we'll be all done! We're calling it our "Aflac Kitchen" since the Cancer policy has funded this project. For that I am thankful, it was about time!
Dave went to Costa Rica this past week on business. While he was gone, I went in for my Radiation Simulation on Monday..this is where they tattoo me, get me marked up with a Sharpie, line me up and get me ready for my upcoming Radiation. I then had my Port Removal surgery done on Tuesday and then started Radiation on Wednesday. On Tuesday, although the port removal was a simple procedure, it was not pain free. My surgeon told me I could drive myself to and from the appointment, but I'm glad my Mom came with me. All I can say is, "OUCHHHH!!!" He used a local anesthetic (or claimed to), but it was not a fun procedure. I'm just glad it is over and done with and out of me! The port was great to have during chemo, but since I didn't have any more need for it, I wanted it out!
Wednesday was my first Radiation appointment (of 33) and that is quite painless! I think like many have said that after going through chemo, the radiation will be a piece of cake. I get "zapped" from 3 different angles and the whole procedure takes about 10 minutes. No big deal, I'll just need to keep aloe on my skin since I am so fair and burn quite easily. They said that in about the third week that fatigue will probably kick in. I'm just glad I can rest and nap when I need to so, I'll get through it.
I was having nausea this week and figured out that it was from starting Tamoxifen. I read up on the side effects and it said that when starting on this "miracle drug", nausea can be a side effect at the beginning of treatment. I'll be on this for 5 years so I'm glad the nausea shouldn't be something permanent! This drug blocks the estrogen (which my type of breast cancer feeds off of), so it will help me not to have a recurrence. It also keeps me in chemically-induced menopause, so I continue to have hot flashes. I'm just dealing with them and taking off my bandana to keep cool! It goes with the territory so I won't complain although they are not the most fun thing to deal with. Such is life!
Well, not too much else is happening. Our kitchen remodel is just waiting on the painter to paint the walls, ceiling and cabinets, then we'll be all done! We're calling it our "Aflac Kitchen" since the Cancer policy has funded this project. For that I am thankful, it was about time!
Thursday, August 27, 2009
Good News!!!
So, I saw Dr. Landis, my main Oncologist on Tuesday afternoon. He looked over everything, chatted a little, did an exam and at the end told me, "I'll see you in 6 months!" Woo hoo, music to my ears! Don't get me wrong, excellent doctor, excellent staff, just not a place I want to be at every 3 weeks! I was so happy to check out of there! I got my pink Breast Cancer Awareness magnet for the back of my car...kind of like a graduation present! (Although it cost me $5, it's for a good cause!)
Yesterday, I had 2 appointments and believe me, by the end of the day I was exhausted. The first was with the Radiation Oncologist to line me up and mark me for my upcoming Radiation. After that, I drove about 30 minutes away for my Diagnostic Mammogram. Everything was clear!! Yay!! All the torture of chemo worked. I can't believe that 6 months has gone by since my mammogram in February when I was diagnosed. I'd say, "Time flies when you're having fun", but, I gotta be honest and say I wasn't having a whole lot of fun these last 6 months (there were some good moments)...suffice it to say, I was happy to get a clean report and know that I've got 6 more months until my next mammogram!
I also went to the surgeon's office today and got my port removal procedure scheduled for next Tuesday. Both my Oncologist and Radiation Oncologist said that I have no need for the port anymore and that it's fine to come out. Good riddance I say! I was happy to have it in there for the chemo but I am over and done with that now so get that port out of me!!
Well, that's about all for now...we're focusing on our kitchen remodeling which has been a great diversion. It's good to have something to look forward to and I know we'll like having this project completed!
Yesterday, I had 2 appointments and believe me, by the end of the day I was exhausted. The first was with the Radiation Oncologist to line me up and mark me for my upcoming Radiation. After that, I drove about 30 minutes away for my Diagnostic Mammogram. Everything was clear!! Yay!! All the torture of chemo worked. I can't believe that 6 months has gone by since my mammogram in February when I was diagnosed. I'd say, "Time flies when you're having fun", but, I gotta be honest and say I wasn't having a whole lot of fun these last 6 months (there were some good moments)...suffice it to say, I was happy to get a clean report and know that I've got 6 more months until my next mammogram!
I also went to the surgeon's office today and got my port removal procedure scheduled for next Tuesday. Both my Oncologist and Radiation Oncologist said that I have no need for the port anymore and that it's fine to come out. Good riddance I say! I was happy to have it in there for the chemo but I am over and done with that now so get that port out of me!!
Well, that's about all for now...we're focusing on our kitchen remodeling which has been a great diversion. It's good to have something to look forward to and I know we'll like having this project completed!
Tuesday, August 25, 2009
More Appointments
Well, I thought I should do an update here since it's been a while. Today marks 3 weeks from my last chemo round and I'm so happy because I'm NOT getting chemo today!!! Yep, since April 21st, every three weeks I was getting chemo. But, I do go in to see my Oncologist this afternoon. I'll do an update to let you know how the appointment goes. I'm not really sure of what to expect, hopefully he'll tell me I can get my port out soon, we shall see.
Tomorrow, I go to my Radiation Oncologist's office for my CT scan. I believe this is the beginning of my radiation treatment. I know he said they'll mark me (I guess with a Sharpie or something) and then schedule the Simulation, etc. I'll update you more on that too, when I know more. Seems like a lot of doctor's appointments to go to and will know a lot more afterwards. I also have a Diagnostic Mammogram set up for tomorrow afternoon. I can't believe it's already been 6 months since this all started. Actually I can believe it, it seems like time has stood still, at least for my bald head. My hair is just not coming in like I was hoping, but I need to be patient. Now that no more chemo is getting pumped into me, my hair (and nails) will get a chance to grow back in like they should. My eyelashes are still with me, but my eyebrows are quite sparse. Thank goodness for eyebrow pencil!!! I think makeup is KEY to a woman who has no hair and is losing what little she does have on her face (eyebrows to be exact). Anyway, all I know is I look a heck of a lot better with my makeup on than off!
Well, that's all for now. I'm feeling GREAT thank goodness. It definitely took me a lot longer to feel normal after this last round of chemo, but that's o.k., at least it's all done! I'll follow up after my appointments these next two days to let you know what the good doctors have to say!
Tomorrow, I go to my Radiation Oncologist's office for my CT scan. I believe this is the beginning of my radiation treatment. I know he said they'll mark me (I guess with a Sharpie or something) and then schedule the Simulation, etc. I'll update you more on that too, when I know more. Seems like a lot of doctor's appointments to go to and will know a lot more afterwards. I also have a Diagnostic Mammogram set up for tomorrow afternoon. I can't believe it's already been 6 months since this all started. Actually I can believe it, it seems like time has stood still, at least for my bald head. My hair is just not coming in like I was hoping, but I need to be patient. Now that no more chemo is getting pumped into me, my hair (and nails) will get a chance to grow back in like they should. My eyelashes are still with me, but my eyebrows are quite sparse. Thank goodness for eyebrow pencil!!! I think makeup is KEY to a woman who has no hair and is losing what little she does have on her face (eyebrows to be exact). Anyway, all I know is I look a heck of a lot better with my makeup on than off!
Well, that's all for now. I'm feeling GREAT thank goodness. It definitely took me a lot longer to feel normal after this last round of chemo, but that's o.k., at least it's all done! I'll follow up after my appointments these next two days to let you know what the good doctors have to say!
Monday, August 17, 2009
Met with the Radiation Oncologist
Well, I'm almost 2 weeks out since my last chemo. It's been interesting, mentally I'm great, knowing that the chemo is behind me is such a relief. My body on the other hand, is experiencing the effects of chemo and I just want that behind me too! I have to remind myself that the effects are cumulative and give myself a break. The nausea has lasted a lot longer than the previous rounds and my feet and ankles have been swollen which is another side effect. I still get tired pretty easily so I'm trying to rest up when I can...I'm getting better every day though and know that the yuckiness of chemo will be behind me soon.
I met with Dr. Gargus, my Radiation Oncologist this past Thursday. He's got me coming back on 8/26 for my CT scan at 11:00 AM. They'll do some preliminary markings to get me set up for my Radiation. At 1:00 PM that same day, I have a Diagnostic Mammogram and see how things look. Oh well, good to get it all done and know how things are going! Going to all these doctors appointments isn't always fun, but it comes with the package. I'm thankful that I don't work right now and can do these while the boys are at school. Knowing that I'll be going through 33 rounds of radiation is just something that will be part of my schedule for 6- 1/2 weeks. Just a blip on the radar though and hopefully will fly by without any problems.
We're staying busy with our kitchen remodel and getting the kids back in their school routine. I'm grateful for so many friends that have been supporting me and know that without them, I wouldn't be where I am today. Some friends from church got together last Tuesday for a "No More Chemo" celebration. It was so nice to get together with friends and just celebrate the fact that part of my treatment being done. I certainly hope we'll have many celebrations. Life to too short not to enjoy these special moments and so, I will be looking forward to many more gatherings!!!
I met with Dr. Gargus, my Radiation Oncologist this past Thursday. He's got me coming back on 8/26 for my CT scan at 11:00 AM. They'll do some preliminary markings to get me set up for my Radiation. At 1:00 PM that same day, I have a Diagnostic Mammogram and see how things look. Oh well, good to get it all done and know how things are going! Going to all these doctors appointments isn't always fun, but it comes with the package. I'm thankful that I don't work right now and can do these while the boys are at school. Knowing that I'll be going through 33 rounds of radiation is just something that will be part of my schedule for 6- 1/2 weeks. Just a blip on the radar though and hopefully will fly by without any problems.
We're staying busy with our kitchen remodel and getting the kids back in their school routine. I'm grateful for so many friends that have been supporting me and know that without them, I wouldn't be where I am today. Some friends from church got together last Tuesday for a "No More Chemo" celebration. It was so nice to get together with friends and just celebrate the fact that part of my treatment being done. I certainly hope we'll have many celebrations. Life to too short not to enjoy these special moments and so, I will be looking forward to many more gatherings!!!
Saturday, August 8, 2009
Woo Hoo! Let's Celebrate!!!
So, how can I say this and really get my true feelings across? I am soooooooo excited and thankful to be where I am RIGHT NOW in time....I just can't put it into words. I almost broke down in tears this morning while on my walk, just so thankful to know I am officially DONE with chemo. To know that my body is now healing and I am feeling better, to have that yucky phase behind me. I'm overwhelmed with the enormity of what it means to be done with my chemotherapy. What a year! Dave and I had a toast last night (with a Mimosa), and it was just so symbolic. To put this past year behind us and get on with the future. Live is so worth celebrating and we need to enjoy and appreciate each and every single minute we have. We need to laugh, breathe, enjoy our family, friends and loved ones and grasp hold of each special situation we are in. Again, I just don't feel like I'm able to put my thoughts into words, I'm inadequate here, but I hope I'm conveying what is in my heart.
I can't tell you how happy I was to leave the oncologist's office this past Tuesday. The nurses and staff were wonderful, I even baked them a treat to say, "Thanks for taking care of me and all the patients". They appreciated that and I appreciated being able to show my gratitude. My "Hello Dollies" are a great way to say "Thanks!" They gave me a "Purple Heart Award" certificate when I finished up my chemo and all the other patients clapped and said "Congratulations". I appreciated this, but at the same time felt a tug at my heart knowing that some of these patients will continue on with their treatments or may not have the same prognosis that I have. Going through cancer definitely opens your eyes to the trials other people face and makes you appreciate the hurdles you are able to overcome.
So, my mom and I got into her car after leaving the doctor's office. I just totally broke down in tears. The enormity of what I had just finished hit me and I was so relieved that it was over. I never, ever want to go through something like that again. So many have told me how well I am doing through all this, but sometimes I don't know how I've made it. Going through Dave's cancer was hard enough and then to get diagnosed myself on top of that was just almost too much for me to handle. I know for certain that it has been the prayers of so many and only by God's grace that I have been able to endure this.
My boys only made it 1/2 way through their week at spend-the-night camp. It was a lot to expect them to be there the whole time, but we're proud of them for sticking it out. Our oldest son, Bryce, has Asperger's (a mild form of Autism) and I think that presented a challenge to the staff, especially knowing I was going through my last chemo round. The boys had fun, but throw the ramifications of everything we're going through, they made it as long as they could. Dave was able to pick them up Wednesday and to be honest, we were glad to have them home. This gives us time to get them back on a schedule and ready to start back to school on a good note (this coming Monday). I somehow mustered the strength to take them to school to meet their teachers on Thursday and I know they enjoyed seeing everyone. Part of me is so glad the summer break is over (because my chemo is over!), but at the same time I'm sad it went by so fast!
Well, we're on to remodeling our kitchen now which is a great diversion for me! I'm excited to update and get new "stuff" and it's sad to say, but if it weren't for Aflac paying us during our cancer treatment, I don't know if we could have done this. I certainly look at it as another silver lining of our journey and am looking forward to the finished project!!!
I can't tell you how happy I was to leave the oncologist's office this past Tuesday. The nurses and staff were wonderful, I even baked them a treat to say, "Thanks for taking care of me and all the patients". They appreciated that and I appreciated being able to show my gratitude. My "Hello Dollies" are a great way to say "Thanks!" They gave me a "Purple Heart Award" certificate when I finished up my chemo and all the other patients clapped and said "Congratulations". I appreciated this, but at the same time felt a tug at my heart knowing that some of these patients will continue on with their treatments or may not have the same prognosis that I have. Going through cancer definitely opens your eyes to the trials other people face and makes you appreciate the hurdles you are able to overcome.
So, my mom and I got into her car after leaving the doctor's office. I just totally broke down in tears. The enormity of what I had just finished hit me and I was so relieved that it was over. I never, ever want to go through something like that again. So many have told me how well I am doing through all this, but sometimes I don't know how I've made it. Going through Dave's cancer was hard enough and then to get diagnosed myself on top of that was just almost too much for me to handle. I know for certain that it has been the prayers of so many and only by God's grace that I have been able to endure this.
My boys only made it 1/2 way through their week at spend-the-night camp. It was a lot to expect them to be there the whole time, but we're proud of them for sticking it out. Our oldest son, Bryce, has Asperger's (a mild form of Autism) and I think that presented a challenge to the staff, especially knowing I was going through my last chemo round. The boys had fun, but throw the ramifications of everything we're going through, they made it as long as they could. Dave was able to pick them up Wednesday and to be honest, we were glad to have them home. This gives us time to get them back on a schedule and ready to start back to school on a good note (this coming Monday). I somehow mustered the strength to take them to school to meet their teachers on Thursday and I know they enjoyed seeing everyone. Part of me is so glad the summer break is over (because my chemo is over!), but at the same time I'm sad it went by so fast!
Well, we're on to remodeling our kitchen now which is a great diversion for me! I'm excited to update and get new "stuff" and it's sad to say, but if it weren't for Aflac paying us during our cancer treatment, I don't know if we could have done this. I certainly look at it as another silver lining of our journey and am looking forward to the finished project!!!
Monday, August 3, 2009
My 6th and FINAL chemo round is tomorrow!!!!
So, I have been doing absolutely great and keeping way too busy since my last blog entry. But like I've said many times before, "No news is good news!" I'm so psyched that tomorrow is almost here to go to my last chemo infusion. At the same time, I'm soooooo tired (really did too many errands today), but that's o.k., at least I have the time and energy.
I think the main reason I'm tired though is that we sent Bryce & Kyle to spend-the-night camp (for the kids whose parents have cancer), but we got a call at 1:35 AM because Bryce was getting bitten by mosquitoes and was too hot to sleep and had been crying for an hour and a half. We talked with him and told him we couldn't come up right then and there to pick him up and that he had to figure out a way to deal with this. I also told him, "It's a once in a lifetime experience and you have to make the most of it." This REALLY stuck with him and the counselors called us today to discuss everything and said after that phone call, he really re-grouped and did o.k. So, we're all on the same page and hoping he can have a REALLY good camp experience and enjoy this week away. We definitely would go get him if we needed to, but we really want him to try to make the most of it. I'm going to be sure to send everyone a huge Thank You note afterwards and how well the staff has handled this situation in dealing with both Bryce and our situation. They all know tomorrow is my last chemo and we all want it to be a celebratory occasion and seeing it as an end to my "fight" and that things are going well and it's a time to be happy! My radiation (33 rounds) should start in about 3 weeks...but I believe that'll be a piece of cake compared to my chemo...
So, I have mixed feelings about tomorrow. I know it's going to be the "same ol', same ol'" where I'll feel cruddy at the end of the week but also, I'm elated to know it's my LAST round of chemo. I have made the 7-layer bars for my nurses who have been awesome during my entire treatment. Heck, I may even give one to Dr. Landis...he deserves a sweet treat too!
I do owe so many thanks to all of you who have been supporting me through encouragement, prayers, meeting physical needs by providing meals for me and my family...it's overwhelming to have experienced the kindness and generosity of so many people for a whole ENTIRE year now. I think I've mentioned this before, but it's worth repeating...tomorrow, Aug. 4th is so significant for us...first of all, it's our nephew's birthday. Happy Birthday Zach! He's serving in the Navy and is in the Persian Gulf right now so, we wish him a very happy day, on board ship! If my chemo'd brain serves me correctly, I believe he's turning 23....wow, that's amazing right there. Next significant thing about tomorrow is that it marks One Year from when Dave was admitted for his first intensive chemo infusion at Crawford Long...and what a year it has been. And now, for me, it marks the END of my chemo treatment. Exactly one year to the day from when Dave started his chemo. I know it's a year we hope we'll never have to repeat, but, again, we could NOT have made it through without your prayers, support, encouragement and friendship. Thank You sooooooo much!!!!
I think the main reason I'm tired though is that we sent Bryce & Kyle to spend-the-night camp (for the kids whose parents have cancer), but we got a call at 1:35 AM because Bryce was getting bitten by mosquitoes and was too hot to sleep and had been crying for an hour and a half. We talked with him and told him we couldn't come up right then and there to pick him up and that he had to figure out a way to deal with this. I also told him, "It's a once in a lifetime experience and you have to make the most of it." This REALLY stuck with him and the counselors called us today to discuss everything and said after that phone call, he really re-grouped and did o.k. So, we're all on the same page and hoping he can have a REALLY good camp experience and enjoy this week away. We definitely would go get him if we needed to, but we really want him to try to make the most of it. I'm going to be sure to send everyone a huge Thank You note afterwards and how well the staff has handled this situation in dealing with both Bryce and our situation. They all know tomorrow is my last chemo and we all want it to be a celebratory occasion and seeing it as an end to my "fight" and that things are going well and it's a time to be happy! My radiation (33 rounds) should start in about 3 weeks...but I believe that'll be a piece of cake compared to my chemo...
So, I have mixed feelings about tomorrow. I know it's going to be the "same ol', same ol'" where I'll feel cruddy at the end of the week but also, I'm elated to know it's my LAST round of chemo. I have made the 7-layer bars for my nurses who have been awesome during my entire treatment. Heck, I may even give one to Dr. Landis...he deserves a sweet treat too!
I do owe so many thanks to all of you who have been supporting me through encouragement, prayers, meeting physical needs by providing meals for me and my family...it's overwhelming to have experienced the kindness and generosity of so many people for a whole ENTIRE year now. I think I've mentioned this before, but it's worth repeating...tomorrow, Aug. 4th is so significant for us...first of all, it's our nephew's birthday. Happy Birthday Zach! He's serving in the Navy and is in the Persian Gulf right now so, we wish him a very happy day, on board ship! If my chemo'd brain serves me correctly, I believe he's turning 23....wow, that's amazing right there. Next significant thing about tomorrow is that it marks One Year from when Dave was admitted for his first intensive chemo infusion at Crawford Long...and what a year it has been. And now, for me, it marks the END of my chemo treatment. Exactly one year to the day from when Dave started his chemo. I know it's a year we hope we'll never have to repeat, but, again, we could NOT have made it through without your prayers, support, encouragement and friendship. Thank You sooooooo much!!!!
Thursday, July 30, 2009
Just Thought I'd Catch Up...
So, this isn't really about Breast Cancer, or chemo, but it's been a while since I've made a post and I figured I'd write to say how things are going. Things for me have definitely been on the upswing since my last post, thank goodness. I know that since my 6th and final chemo is about 5 days away, the psychological effect is knowing it's almost over is just brightening every day. At the same time, I have a bit of anxiety, just knowing the chemo will be pumped in me one last time, but I can get through it and the end is in sight.
Keeping busy through all this is key, and man, we've been busy. This past weekend we went to the Sarcoma Awareness Walk at Piedmont Park which was a very inspirational event. For Dave and myself, it was great seeing his 3 doctors, different nurses and PA's and a slew of cancer survivors and some still in treatment. Last year, about 60 attended the event and this year they had 120. They met their goal of doubling in numbers and hopefully, next year, they can double again. Since I've been going through treatment, I had "kind of" forgotten a lot of what Dave had gone through, but this event really made me realize all that he did go through to fight his Liposarcoma and how incredibly blessed we were that it was as "simple" as it was. No, it was not easy, no, it was not fun AT ALL, but, seeing other patients who have had amputations, or recurrence, or are STILL in treatment, made us realize that God blessed us in getting Dave through his cancer in an amazing way. We're still keeping an eye on him and praying for no recurrence (his next CT scan is Aug. 11th), but we can't worry about the future and we know that through God's grace and provision, we'll be able to get through whatever comes our way.
The rest of the weekend was spent with family which was fun. We went to dinner with my oldest brother, Ed, who was coming through town to pick up Mom for a trip to Ft. Lauderdale. One of our dear family friends of over 48 years had passed away, so they went down for his funeral. I really wished I could have gone, but with everything going on here, we decided it was best I stay put. Even though I feel great and my levels are o.k., it would just be a hard trip and I'd be around lots of people (and foreign germs) which I don't need to expose myself to these days. It stinks, but I know everyone understands.
Sunday, we took the boys up to see Camp Toccoa where they'll be going this coming Sunday for their spend-the-night camp. They are both so excited which is so encouraging to us. I hope it'll be a great way to end their Summer break. The camp is called Camp Kesem and it's for children whose parents have had (or have) cancer. I know I've mentioned it before so I won't expound on this. Anyway, we visited a Museum, have a great lunch of Southern cooking and enjoyed our time as a family.
So, with this I'll close for now. I'll be spending the next few days getting the kids ready for their camp and for my last chemo round. On Tuesday, I'll be the patient whooping it up and dancing around the infusion room celebrating my last day there (I'll try to contain myself for the sake of the other patients), but I think you know what I mean. God has been so good to me to get me through all this with little or no complications and I know that only by His Grace, I am able to endure what's been placed in my path.
Keeping busy through all this is key, and man, we've been busy. This past weekend we went to the Sarcoma Awareness Walk at Piedmont Park which was a very inspirational event. For Dave and myself, it was great seeing his 3 doctors, different nurses and PA's and a slew of cancer survivors and some still in treatment. Last year, about 60 attended the event and this year they had 120. They met their goal of doubling in numbers and hopefully, next year, they can double again. Since I've been going through treatment, I had "kind of" forgotten a lot of what Dave had gone through, but this event really made me realize all that he did go through to fight his Liposarcoma and how incredibly blessed we were that it was as "simple" as it was. No, it was not easy, no, it was not fun AT ALL, but, seeing other patients who have had amputations, or recurrence, or are STILL in treatment, made us realize that God blessed us in getting Dave through his cancer in an amazing way. We're still keeping an eye on him and praying for no recurrence (his next CT scan is Aug. 11th), but we can't worry about the future and we know that through God's grace and provision, we'll be able to get through whatever comes our way.
The rest of the weekend was spent with family which was fun. We went to dinner with my oldest brother, Ed, who was coming through town to pick up Mom for a trip to Ft. Lauderdale. One of our dear family friends of over 48 years had passed away, so they went down for his funeral. I really wished I could have gone, but with everything going on here, we decided it was best I stay put. Even though I feel great and my levels are o.k., it would just be a hard trip and I'd be around lots of people (and foreign germs) which I don't need to expose myself to these days. It stinks, but I know everyone understands.
Sunday, we took the boys up to see Camp Toccoa where they'll be going this coming Sunday for their spend-the-night camp. They are both so excited which is so encouraging to us. I hope it'll be a great way to end their Summer break. The camp is called Camp Kesem and it's for children whose parents have had (or have) cancer. I know I've mentioned it before so I won't expound on this. Anyway, we visited a Museum, have a great lunch of Southern cooking and enjoyed our time as a family.
So, with this I'll close for now. I'll be spending the next few days getting the kids ready for their camp and for my last chemo round. On Tuesday, I'll be the patient whooping it up and dancing around the infusion room celebrating my last day there (I'll try to contain myself for the sake of the other patients), but I think you know what I mean. God has been so good to me to get me through all this with little or no complications and I know that only by His Grace, I am able to endure what's been placed in my path.
Wednesday, July 22, 2009
The Worst is Behind Me!
First of all, I want to say "Thank You " for all your prayers, encouragement and support. I'm doing the proverbial knocking on wood as I type this to say that Round 5 definitely went as smoothly as Round 4 and I can see the light at the end of the tunnel! I really only had one day (Thursday) where I felt lousy, but it was mainly from the bone pain brought on by the Neulasta shot. So many people have told me how "good I look" and "I have a sparkle in my eye"...I tell them that I think I'm the healthiest chemo patient in Gwinnett Co. But that is so awesome! I know it's because I have hundreds of people praying and God has been faithful and amazing in letting me get through chemo with little to no complications.
Knowing that my last Round is just a few weeks away is so freeing. I can envision dancing around saying, "Whoo hoo, it's over!!!" I'd say that this has been the hardest thing I've been through, but to be honest, it was so much harder for me to see my husband, Dave, go through the intensive chemo he went through and the toll it took on him physically and mentally. Ugh, that was by far the worst thing we've ever had to endure in our 21+ years of marriage. With this week being Sarcoma Awareness Week, my hats (or should I say scarves) go off to all the Sarcoma patients out there that have had to endure countless rounds of chemotherapy, numerous surgeries, too many to count CT/PET scans and the like. Sarcomas are so rare and aggressive and yet are so unheard of. When I mention to people about Dave's Liposarcoma, they honestly say that they've never heard of such a thing. Well, I hope that many people become aware of Sarcomas and the funding is appropriated for research to conquer that nasty beast of cancer. The treatment has to be so aggressive because the cancer is and the chances of recurrences are so great, especially in the lungs and the liver. So, my scarves off to all you Sarcoma patients! I hope that somehow, the Liddy Shriver Initiative will be to Sarcomas as the Susan G. Komen Fund is to Breast Cancer!
Well, I think this will be about it for now. I am feeling fine, not great yet, but definitely fine! :-) I'm back to walking at our Park, taking the boys to their swim lessons and getting back into a normal schedule. Again, my thanks to all of you for your amazing, continued support! It's been one long journey and I couldn't make it without you!
Knowing that my last Round is just a few weeks away is so freeing. I can envision dancing around saying, "Whoo hoo, it's over!!!" I'd say that this has been the hardest thing I've been through, but to be honest, it was so much harder for me to see my husband, Dave, go through the intensive chemo he went through and the toll it took on him physically and mentally. Ugh, that was by far the worst thing we've ever had to endure in our 21+ years of marriage. With this week being Sarcoma Awareness Week, my hats (or should I say scarves) go off to all the Sarcoma patients out there that have had to endure countless rounds of chemotherapy, numerous surgeries, too many to count CT/PET scans and the like. Sarcomas are so rare and aggressive and yet are so unheard of. When I mention to people about Dave's Liposarcoma, they honestly say that they've never heard of such a thing. Well, I hope that many people become aware of Sarcomas and the funding is appropriated for research to conquer that nasty beast of cancer. The treatment has to be so aggressive because the cancer is and the chances of recurrences are so great, especially in the lungs and the liver. So, my scarves off to all you Sarcoma patients! I hope that somehow, the Liddy Shriver Initiative will be to Sarcomas as the Susan G. Komen Fund is to Breast Cancer!
Well, I think this will be about it for now. I am feeling fine, not great yet, but definitely fine! :-) I'm back to walking at our Park, taking the boys to their swim lessons and getting back into a normal schedule. Again, my thanks to all of you for your amazing, continued support! It's been one long journey and I couldn't make it without you!
Thursday, July 16, 2009
So Far, So Good? Jury is still out...
Well, I must say that I am just relieved to have Round 5 infused and I can officially say that I have one Round left. What a huge milestone! I know I keep saying this, but I truly can't wait to get through this chemo and just be done with it!
I am hanging in there. I'm taking the Claritin and hoping that the bone pain will subside in the next day or two. It's just weird. I got the Neulasta shot at 2:00 PM yesterday and by 8:00 PM, my cheekbones, ribs, jaw bones, and many other bones hurt. We know the shot is working, that is the main thing.
The boys have been enjoying their day camp this week and I'm thankful they are doing it! Bryce is racing his Soap Box Derby car tomorrow and Kyle will be launching his rocket. I don't know if I will make it or not, all depends on how I do tonight, but I know they've had a great time at the camp and for that I am thankful.
Well, here's to hoping that this round goes as smoothly as Round 4 did, we shall see. I can only hope that it does and in a few days I'll be writing that I've "turned the corner" and everything is good!
I am hanging in there. I'm taking the Claritin and hoping that the bone pain will subside in the next day or two. It's just weird. I got the Neulasta shot at 2:00 PM yesterday and by 8:00 PM, my cheekbones, ribs, jaw bones, and many other bones hurt. We know the shot is working, that is the main thing.
The boys have been enjoying their day camp this week and I'm thankful they are doing it! Bryce is racing his Soap Box Derby car tomorrow and Kyle will be launching his rocket. I don't know if I will make it or not, all depends on how I do tonight, but I know they've had a great time at the camp and for that I am thankful.
Well, here's to hoping that this round goes as smoothly as Round 4 did, we shall see. I can only hope that it does and in a few days I'll be writing that I've "turned the corner" and everything is good!
Sunday, July 12, 2009
Been Quite Busy, Gearing up for Round 5
As I have said before with doing the blog, no news is good news. It's been 10 days since my last post and that is good. I've been staying busy with the kids, enjoying the "good days" and not thinking too much about the upcoming chemo. You know what? I am so pumped to get the next 2 rounds over and done with, I can't wait for it to get here. I can see that proverbial light at the end of the tunnel and know that my chemo is going to be over with before I know it. Round 4 went pretty smoothly and I can only hope that the next 2 Rounds will be as uneventful. I did try Claritin again and I actually think it helped since I only needed to take Lortab for one day to ease the bone pain! That was awesome. I can handle anti-nausea meds for about a week and one day of Lortab...easy, peasey, pumpkin squeezy!
I do think so much of this whole cancer journey is mental. I know that although Round 3 was my 1/2-way point, it still seemed like forever until the end. I was just absolutely miserable and I'm hoping and praying that will be remembered as my worst Round. Right now I can envision saying (after Round 5) that I only have 1 more Round...it seems so close and around the corner...I know I can make it and I will!
I did get in to see a few doctors these last two weeks and I'm so glad I did. I saw my Dermatologist to help me with the itchy skin and bumps I was dealing with. That was such a good move, they put me on a prescribed lotion to ease the itching and it worked! The red spots are gone and I'm not digging, clawing, tearing up my skin anymore! There was a definite correlation between the areas of skin I was itching at and what was exposed to the sun...so, I've been using sunscreen, wearing shirts that cover more up and staying out of the direct sunlight when I can. I'm so glad to have that under control, it was a real nuisance.
The other doctor I saw last week was my Podiatrist. Here's what happened...after Round 4, I noticed my fingernails feeling quite numb. Neuropathy is a definite side effect and some chemo patients lose their fingernails and toenails. Gross, huh? I started using a lot of lotion before bed, hoping to moisturize the heck out of my nails and to prevent losing them. Well, I also noticed my big toenail on my left foot throbbing. Not good, nor was the fact that it was red all around the nail. Hmm, well, I took off my cute nail polish and noticed that my big toenail was 1/2 purple. So, I made the appointment with the Podiatrist and she said I probably jammed it somehow (I couldn't remember what I did to it), and she said the nail would probably come off on its own, but she recommended taking it off to avoid the risk of infection (especially with my immune system being compromised from the chemo)...so, yes, I had the nail removed last Monday. Thank God she numbed it up good, I couldn't look at her removing it, but it's gone. I've faithfully been doing my "Hibiclens" soak, twice a day, 20 minutes each time. So, all that to say I'll be growing out my hair and my big toe nail at the same time!
Yes, I'll be going in for Round 5 on Tuesday, July 14th. Your prayers and words of encouragement are so appreciated still! We're so blessed with such a great support network and I know that is continuing to see us through this incredible journey.
I do think so much of this whole cancer journey is mental. I know that although Round 3 was my 1/2-way point, it still seemed like forever until the end. I was just absolutely miserable and I'm hoping and praying that will be remembered as my worst Round. Right now I can envision saying (after Round 5) that I only have 1 more Round...it seems so close and around the corner...I know I can make it and I will!
I did get in to see a few doctors these last two weeks and I'm so glad I did. I saw my Dermatologist to help me with the itchy skin and bumps I was dealing with. That was such a good move, they put me on a prescribed lotion to ease the itching and it worked! The red spots are gone and I'm not digging, clawing, tearing up my skin anymore! There was a definite correlation between the areas of skin I was itching at and what was exposed to the sun...so, I've been using sunscreen, wearing shirts that cover more up and staying out of the direct sunlight when I can. I'm so glad to have that under control, it was a real nuisance.
The other doctor I saw last week was my Podiatrist. Here's what happened...after Round 4, I noticed my fingernails feeling quite numb. Neuropathy is a definite side effect and some chemo patients lose their fingernails and toenails. Gross, huh? I started using a lot of lotion before bed, hoping to moisturize the heck out of my nails and to prevent losing them. Well, I also noticed my big toenail on my left foot throbbing. Not good, nor was the fact that it was red all around the nail. Hmm, well, I took off my cute nail polish and noticed that my big toenail was 1/2 purple. So, I made the appointment with the Podiatrist and she said I probably jammed it somehow (I couldn't remember what I did to it), and she said the nail would probably come off on its own, but she recommended taking it off to avoid the risk of infection (especially with my immune system being compromised from the chemo)...so, yes, I had the nail removed last Monday. Thank God she numbed it up good, I couldn't look at her removing it, but it's gone. I've faithfully been doing my "Hibiclens" soak, twice a day, 20 minutes each time. So, all that to say I'll be growing out my hair and my big toe nail at the same time!
Yes, I'll be going in for Round 5 on Tuesday, July 14th. Your prayers and words of encouragement are so appreciated still! We're so blessed with such a great support network and I know that is continuing to see us through this incredible journey.
Thursday, July 2, 2009
Happy 4th of July Wishes!
Wow, it's hard to believe that this year is half-way over and here we are, about to celebrate the 4th of July. I'd ask the rhetorical, "where does the time go?" question, but we know...at least I do. We are coming up on the year anniversary (July 15th) of when Dave was diagnosed. What a year! I NEVER would have imagined this for our lives, but, we're making it through...sometimes plodding through, but we're getting through, slowly but surely.
I've been feeling somewhat "normal" since Monday or so (it's Thursday)...as always, it's good to feel good again. And two more rounds...now how about that? I'm so tickled I can hardly stand it! There was something psychological of getting through the 4th round that was empowering. I know the end is in sight and I can get there! It helped that I felt so much better this time and the chemo wasn't as hard on me as the last round. I did take the time to go to a dermatologist today to have my itchy, red, irritated skin looked at. It's definitely a combination of the chemo, my very sensitive, dry skin and the sun...not surprised. They've prescribed a lotion that should really help my skin and I'll do my darnedest to stay out of the sun or cover up and use sunscreen faithfully like the doctor suggested. Oh the joys!
We've been staying busy this week which is good. It's finally fun to have the boys home and enjoy the summer like it's meant to be. We've been at the park and pool almost every day and running lots of errands getting ready for the holiday weekend. We, for the first time in 6 or 7 years are NOT hosting a 4th of July gathering. Instead, we are going to 2 of them! That's the way I like it! Actually, we've had a lot of fun in the past cooking out, having our own fireworks show in the cul-de-sac and like being home, but, it'll be nice to bring some side dishes enjoy being with family and friends.
So, with this being said, I wish you all and Happy and Safe 4th of July!
I've been feeling somewhat "normal" since Monday or so (it's Thursday)...as always, it's good to feel good again. And two more rounds...now how about that? I'm so tickled I can hardly stand it! There was something psychological of getting through the 4th round that was empowering. I know the end is in sight and I can get there! It helped that I felt so much better this time and the chemo wasn't as hard on me as the last round. I did take the time to go to a dermatologist today to have my itchy, red, irritated skin looked at. It's definitely a combination of the chemo, my very sensitive, dry skin and the sun...not surprised. They've prescribed a lotion that should really help my skin and I'll do my darnedest to stay out of the sun or cover up and use sunscreen faithfully like the doctor suggested. Oh the joys!
We've been staying busy this week which is good. It's finally fun to have the boys home and enjoy the summer like it's meant to be. We've been at the park and pool almost every day and running lots of errands getting ready for the holiday weekend. We, for the first time in 6 or 7 years are NOT hosting a 4th of July gathering. Instead, we are going to 2 of them! That's the way I like it! Actually, we've had a lot of fun in the past cooking out, having our own fireworks show in the cul-de-sac and like being home, but, it'll be nice to bring some side dishes enjoy being with family and friends.
So, with this being said, I wish you all and Happy and Safe 4th of July!
Saturday, June 27, 2009
Still hanging in there...
So, for whatever reason, I feel much better this time around than my last round. This is excellent news...but I don't want to jinx myself, so I'm not going to go on too much about it. I do think that the Claritin helped with my bone pain this time so I will continue to take it during my last 2 rounds. This round I took about 3 Lortab (total) which is great. I don't like how knocked out I get on Lortab so I really don't want to take them if I don't need to.
Yesterday, Dave & I went over to the new park near our house and walked. I did one lap (about 1.4 miles), but I was very happy with that. Dave did a second lap (which I usually do 2 - 3 laps), but I didn't want to push myself and it was starting to get hot. There's nothing worse than having hot flashes when you're walking and it's pushing 80 - 90 degrees outside. I know the walking is doing me good though and I will continue to do so, especially when I can get up and out when it's cooler (like at 6:30 in the morning). Crazy, crazy weather. I'm getting to be a softy this summer because I'm inside so much, but then I look around and so is everyone else! It's almost too hot to go to the pool! I'm not going into anything about global warming and whatnot, it's just plain hot here in Atlanta, that's all there is to it!
Well, I guess that is about it for now. Thank you for your continued support, I'm so glad that I'm on the downhill side of my chemo. I can handle one in July and my last in August! I'll be so happy to be done with this, you don't know! I guess it is helping me deal with this round knowing I'm more than 1/2 done! Yippee...whoo hoo and all that stuff! :-)
Yesterday, Dave & I went over to the new park near our house and walked. I did one lap (about 1.4 miles), but I was very happy with that. Dave did a second lap (which I usually do 2 - 3 laps), but I didn't want to push myself and it was starting to get hot. There's nothing worse than having hot flashes when you're walking and it's pushing 80 - 90 degrees outside. I know the walking is doing me good though and I will continue to do so, especially when I can get up and out when it's cooler (like at 6:30 in the morning). Crazy, crazy weather. I'm getting to be a softy this summer because I'm inside so much, but then I look around and so is everyone else! It's almost too hot to go to the pool! I'm not going into anything about global warming and whatnot, it's just plain hot here in Atlanta, that's all there is to it!
Well, I guess that is about it for now. Thank you for your continued support, I'm so glad that I'm on the downhill side of my chemo. I can handle one in July and my last in August! I'll be so happy to be done with this, you don't know! I guess it is helping me deal with this round knowing I'm more than 1/2 done! Yippee...whoo hoo and all that stuff! :-)
Tuesday, June 23, 2009
Round 4 Chemo is done....
Now to get through the next 6 days or so....it's always the hardest part of the chemo round. Each day is different so you never know what to expect and it is certainly a roller coaster ride. Hopefully this round will be kinder to me and my body. I know I'm fortunate to only have to go through 6 rounds as I met a gal today, that had to go through 12 rounds. Wow, I can't imagine that and to make it worse, it was her 2nd time having to go through chemo. We each certainly have our own stories, she's a real neat lady and I hope she will be cancer-free from here on out.
Not too much else is news around here...the boys are in day camp again this week which helps me out a bunch. Bryce's group went tree climbing in downtown Atlanta (with harnesses and all), which he really enjoyed. Kyle's group is going to an Animal Safari in Pine Mountain on Friday, I'm sure he'll have a good time. It's been good for them to be busy and it allows me to have some rest time which is much appreciated during my "rough" weeks.
I'll write later when I have more to say....that's all for now!
Not too much else is news around here...the boys are in day camp again this week which helps me out a bunch. Bryce's group went tree climbing in downtown Atlanta (with harnesses and all), which he really enjoyed. Kyle's group is going to an Animal Safari in Pine Mountain on Friday, I'm sure he'll have a good time. It's been good for them to be busy and it allows me to have some rest time which is much appreciated during my "rough" weeks.
I'll write later when I have more to say....that's all for now!
Sunday, June 21, 2009
Happy Father's Day (and some other stuff)
Yes, it's Father's Day...I miss my Dad, he's been gone almost 5 years now (Aug. 11th), that's just hard to believe. We know we'll be reunited with him one day, but it's still a bummer knowing that he's not here with us anymore. The one thing we can be thankful for is that he's not suffering anymore...he really got the bum rap after his stroke, you never want to see anyone who was so full of life go through what he did. Oh well, I don't want to be sad today, because on the other hand, we're thankful that Dave is celebrating Father's Day. We're blessed with 2 healthy boys, sometimes a bit difficult, but after trying for 6 years to have kids, we know that they really are a blessing from God. Also, Dave's dad is 79 and in relatively good health, for which we are thankful too! He's a very neat man and I'm blessed he's been in my life for 22 years!
My week with the boys being gone was definitely refreshing. The boys loved their time with Grandma and at VBS, they really did enjoy themselves. I picked them up on Friday and I think they truly realized how much they missed us. Bryce was crying because he was so happy to see me and Kyle practically knocked me over when running up to hug me. Absence does make the heart grow fonder! Mom kept the boys busy and I think the break was good for the whole family. At first, it was so quiet around here, Dave and I didn't know what to do. Then we got used to it and now that the boys are home, it's never quiet! Also, I know where my time goes when they are here...in the kitchen, picking up their stuff and doing laundry! Oh well, I can handle that, for sure! We're glad they had a good time and really did appreciate the time apart!
Yesterday (Saturday) the skin on my forearms (up to my elbows) and knees starting itching like crazy. Also, the skin on my neck got really itchy. Red little bumps popped up all over the place. I was going nuts and started taking Benadryl, using hydrocortisone cream and tried to get the itching to go away. I took an Aveno bath last night which helped a lot and then today put some ice packs on my arms which helped also. I thought it was some kind of heat rash or dry skin problem, but after Dave talked with Barbara, we found out it's actually a side effect of one of my chemo's, Taxotere. I can't wait to get this stuff out of my system and get back to "normal" if I ever truly will. Anyway, I will call the doctor's office tomorrow morning if it's still bothering me...what an annoyance! My skin is so fair I shouldn't be surprised, I just wasn't expecting this to pop up out of nowhere!
I am scheduled for Round #4 this coming Tuesday. I hope it isn't as hard as Round #3 was, that really was the pits. I'll just really be happy to be on the downhill side and it's reassuring to know I'm over halfway through!
My week with the boys being gone was definitely refreshing. The boys loved their time with Grandma and at VBS, they really did enjoy themselves. I picked them up on Friday and I think they truly realized how much they missed us. Bryce was crying because he was so happy to see me and Kyle practically knocked me over when running up to hug me. Absence does make the heart grow fonder! Mom kept the boys busy and I think the break was good for the whole family. At first, it was so quiet around here, Dave and I didn't know what to do. Then we got used to it and now that the boys are home, it's never quiet! Also, I know where my time goes when they are here...in the kitchen, picking up their stuff and doing laundry! Oh well, I can handle that, for sure! We're glad they had a good time and really did appreciate the time apart!
Yesterday (Saturday) the skin on my forearms (up to my elbows) and knees starting itching like crazy. Also, the skin on my neck got really itchy. Red little bumps popped up all over the place. I was going nuts and started taking Benadryl, using hydrocortisone cream and tried to get the itching to go away. I took an Aveno bath last night which helped a lot and then today put some ice packs on my arms which helped also. I thought it was some kind of heat rash or dry skin problem, but after Dave talked with Barbara, we found out it's actually a side effect of one of my chemo's, Taxotere. I can't wait to get this stuff out of my system and get back to "normal" if I ever truly will. Anyway, I will call the doctor's office tomorrow morning if it's still bothering me...what an annoyance! My skin is so fair I shouldn't be surprised, I just wasn't expecting this to pop up out of nowhere!
I am scheduled for Round #4 this coming Tuesday. I hope it isn't as hard as Round #3 was, that really was the pits. I'll just really be happy to be on the downhill side and it's reassuring to know I'm over halfway through!
Monday, June 15, 2009
No news is great news...
Yes, it's been a few days since I've done an update, but that's a good thing right now. Thank goodness I have 2 weeks where I feel good again before I go back for my next chemo. I'm scheduled to go in every 3 weeks so, next Tuesday is Round #4...whoo hoo, at least I'm on the downhill side of chemo! I have never wanted anything to be done and over with in my whole life as I want to get through my chemo. It's just the pits and I hate feeling lousy...actually, I've never met anyone who likes feeling like they have the flu. Did I mention the salty, metalic taste that I've had this time...eww...it's just nasty. I feel like I have a constant salty taste in my mouth, and right now it's not as bad as it was right after the chemo. Oh well, I know it'll go away, eventually when I'm all done with this. Like I said, I just want to be done with it!
We've been staying busy around here with the boys and enjoying summer. I am trying to do things that are fun with the kids when I'm feeling good. Actually, my mom has given us a reprieve this week by having the boys spend the week with her and they are going to Vacation Bible School (VBS) at her church. They spent a few nights with her last summer, but this time they are gone for 5 nights. Wow, what a break! They were looking forward to spending the week with "Grammy" as Bryce has nick-named her, so it's good all the way around. The house is sooooo quiet! Oh well, I will try to get some things done this week as well as rest a little. I do feel good though, so I want to get some things done as well as getting out and exercising.
We're so excited about a new County Park that has opened less than 1 1/2 miles from our house! We took the boys there this weekend and I went this morning also to go walk/jogging. The park is beautiful and I know we will make such good use of it. The boys loved taking their scooters there while Dave and I walked. Dave is going to get set of Frisbee golf discs (Happy Father's Day!) and put them to good use. Our county is known nationally for their awesome parks, so we are very fortunate to have one so close by.
Speaking of Father's Day, wow, that just hit home. We went to Knoxville last year on Father's Day to see Dave's dad and his sister, Barbara. It was at that time that she and his mom encouraged Dave to get his leg (big muscle) checked out when we got home. I can't believe everything we've been through this past year. Well, we're just going to keep on, keeping on, one day at a time! So much has happened in this past year that we ever could have imagined. OK, sorry for the rabbit trail! I'm going to close for now...gotta get some stuff done while I've got the opportunity!
We've been staying busy around here with the boys and enjoying summer. I am trying to do things that are fun with the kids when I'm feeling good. Actually, my mom has given us a reprieve this week by having the boys spend the week with her and they are going to Vacation Bible School (VBS) at her church. They spent a few nights with her last summer, but this time they are gone for 5 nights. Wow, what a break! They were looking forward to spending the week with "Grammy" as Bryce has nick-named her, so it's good all the way around. The house is sooooo quiet! Oh well, I will try to get some things done this week as well as rest a little. I do feel good though, so I want to get some things done as well as getting out and exercising.
We're so excited about a new County Park that has opened less than 1 1/2 miles from our house! We took the boys there this weekend and I went this morning also to go walk/jogging. The park is beautiful and I know we will make such good use of it. The boys loved taking their scooters there while Dave and I walked. Dave is going to get set of Frisbee golf discs (Happy Father's Day!) and put them to good use. Our county is known nationally for their awesome parks, so we are very fortunate to have one so close by.
Speaking of Father's Day, wow, that just hit home. We went to Knoxville last year on Father's Day to see Dave's dad and his sister, Barbara. It was at that time that she and his mom encouraged Dave to get his leg (big muscle) checked out when we got home. I can't believe everything we've been through this past year. Well, we're just going to keep on, keeping on, one day at a time! So much has happened in this past year that we ever could have imagined. OK, sorry for the rabbit trail! I'm going to close for now...gotta get some stuff done while I've got the opportunity!
Wednesday, June 10, 2009
Feeling Better All the Time
Thank goodness for counts coming back up and my body feeling better again! Round 3 so far has definitely been my hardest, but it's done and I'm on the mend. It's amazing what 24 hours can even be like when going through treatment for cancer. I do think that the cumulative effect of chemo will make it harder each time, but there could so many other variables in how one's body responds. So, with that being said, I'm back on the upswing and so thankful to be feeling good again!
I must say, for me, cancer has taught me to be introspective. Before, I never would have taken the time to do a journal, let alone think of blogging. I know for a fact that God has a plan for me and I'm just waiting to see how it all unfolds. Each day though, someone new is introduced to me which is awesome. I think because I'm a "cancer patient" right now, I draw attention to myself that otherwise, I'd just go around and never be noticed. I always smile and try to be friendly, but it's sweet how people just take the time to do the "extra" stuff for me...there are a lot of nice people out there, really. People are just more sensitive than I ever could have imagined, so maybe it is just giving me a chance to see the world through a different pair of glasses. Yesterday, I was at Wal-mart (seems like I go there too much), but anyway, I was making a return and the Greeter lady just starts talking to me like I was having a cup of coffee with her. First she asked me how I was doing, where I was in my treatment, then she starts to tell me about her husband and how he faired through his battle with cancer. Cancer is life changing, but again, it's for a good reason.
I'm so happy that I'm doing better, it's scary to feel so down and out, but once my counts are back up, it's nice to feel almost "normal" again. I went out for my walk/jog this morning, even that is so nice, to feel strong enough to jog a little. Exercise is so key for me and I'm thankful I was in a good place in my life when my cancer hit. Because of Dave's cancer, I made it a point to walk (and eventually walk/jog) 5 times a week. It helped me so much, just getting outside for at least 30 minutes a day. I'd put on my headset and just go...the sun, the serotonin, fresh air was so therapeutic for me. I have had a history and family background of having a problem with turning to food for solace and being overweight. I didn't want to undo the good I had been doing with Weight Watchers last year when Dave was diagnosed. So, I kept up my exercising and it was just such a healthy way to deal with the stress. When I got diagnosed with Breast Cancer, I eased up on myself a bit and "unjoined" Weight Watchers as I didn't want to worry about my weight, the actual number on the scale and not knowing how I'd respond to chemo and all. But, I also told myself that I'd deal with my treatment the best I could and exercise when I felt my body would tolerate it. I usually don't go out the day after my infusion or the few days following. Hmm, let's see...I went out last Tuesday morning, the day of my infusion. Then I went out for a short walk on Thursday and Friday. The weekend was out of the question. I was feeling better on Monday and went out for a good walk and took yesterday off. This morning, I was out early, feeling strong and had a great time. I know that studies have been done that show exercise is beneficial for people going through chemo. How could it not be? Just the fact that you're exercising is good! For me, I'm so glad I had started this before either of us were diagnosed and I'm thankful to be able to continue my regime even while undergoing chemo. I hope to be in better shape after chemo than before I was diagnosed. How's that for a goal? :-) I've got a busy day planned with the boys so that's all for now!
I must say, for me, cancer has taught me to be introspective. Before, I never would have taken the time to do a journal, let alone think of blogging. I know for a fact that God has a plan for me and I'm just waiting to see how it all unfolds. Each day though, someone new is introduced to me which is awesome. I think because I'm a "cancer patient" right now, I draw attention to myself that otherwise, I'd just go around and never be noticed. I always smile and try to be friendly, but it's sweet how people just take the time to do the "extra" stuff for me...there are a lot of nice people out there, really. People are just more sensitive than I ever could have imagined, so maybe it is just giving me a chance to see the world through a different pair of glasses. Yesterday, I was at Wal-mart (seems like I go there too much), but anyway, I was making a return and the Greeter lady just starts talking to me like I was having a cup of coffee with her. First she asked me how I was doing, where I was in my treatment, then she starts to tell me about her husband and how he faired through his battle with cancer. Cancer is life changing, but again, it's for a good reason.
I'm so happy that I'm doing better, it's scary to feel so down and out, but once my counts are back up, it's nice to feel almost "normal" again. I went out for my walk/jog this morning, even that is so nice, to feel strong enough to jog a little. Exercise is so key for me and I'm thankful I was in a good place in my life when my cancer hit. Because of Dave's cancer, I made it a point to walk (and eventually walk/jog) 5 times a week. It helped me so much, just getting outside for at least 30 minutes a day. I'd put on my headset and just go...the sun, the serotonin, fresh air was so therapeutic for me. I have had a history and family background of having a problem with turning to food for solace and being overweight. I didn't want to undo the good I had been doing with Weight Watchers last year when Dave was diagnosed. So, I kept up my exercising and it was just such a healthy way to deal with the stress. When I got diagnosed with Breast Cancer, I eased up on myself a bit and "unjoined" Weight Watchers as I didn't want to worry about my weight, the actual number on the scale and not knowing how I'd respond to chemo and all. But, I also told myself that I'd deal with my treatment the best I could and exercise when I felt my body would tolerate it. I usually don't go out the day after my infusion or the few days following. Hmm, let's see...I went out last Tuesday morning, the day of my infusion. Then I went out for a short walk on Thursday and Friday. The weekend was out of the question. I was feeling better on Monday and went out for a good walk and took yesterday off. This morning, I was out early, feeling strong and had a great time. I know that studies have been done that show exercise is beneficial for people going through chemo. How could it not be? Just the fact that you're exercising is good! For me, I'm so glad I had started this before either of us were diagnosed and I'm thankful to be able to continue my regime even while undergoing chemo. I hope to be in better shape after chemo than before I was diagnosed. How's that for a goal? :-) I've got a busy day planned with the boys so that's all for now!
Monday, June 8, 2009
Update on Round 3
Well, it's been a while since I've done a post so I figured I'd catch everyone up on how things are going. Suffice it to say, it gets harder with each round. I'm six days out right now and still feel kind of crummy. I had a really rough time early Saturday morning, almost to where I wanted Dave to take me to the E/R. I think my white counts were at their lowest then and I could just feel every ache and pain inside me times 100. It was just horrible, I don't want to go into details, but trust me, I could feel everything happening inside me and it felt like my insides were on fire...now it's Monday night and I'm still not back to feeling "normal"...I can't wait to feel normal again.
Although I'm half-way through with my chemo, I feel like everything is hitting me at once. Maybe I've suppressed some of my feelings, but I just had a pity party this time around. I want my hair back, I'm tired of cancer, of being the "family with cancer", of just not being normal. My sister put it this way, "Get used to your new normal". Well, I want the old normal back. I guess we'll never have the old normal. After getting diagnosed with cancer and dealing with it, going through the treatments and living with the scars of it, life will never be like it used to be. I know that we'll get through this, I'm just so ready for it to be over.
It's ok for me to feel like this, it's got to be...dealing with all the emotions is just exhausting and I wish I didn't have to process all of this. I need to though, to work through it and understand how I can be a better person because of it. I do know for a fact that so many people care for us, are praying for us and that we've got great friends, family and neighbors. Also, it could be a lot worse. Dave and I often remind ourselves, although our situation is not "normal", we're fortunate in that either of our cancers could have been so much worse. There are so many people that aren't as lucky as we are, to have insurance, a company that supports and believes in us and cares about us, to have doctors that are awesome available to us, that we're going to be SURVIVORS and that we're making it through our treatments rather unscathed.
I still don't know how Dave made it through the chemo that he went through. I get a fraction of the amount he'd receive and I feel like crap. I know he had some rough times, but really, I don't know how he made it through. I just truly hope and pray that a cure for cancer can be found during our lifetime that won't require chemo. Chemo just plain stinks...I wouldn't wish it on anybody...ever.
So, I guess getting this stuff "out on the table" is good for the soul. I know I'm on the upswing and look forward to the days that I don't have "tummy troubles". I look forward to feeling good again and have my wits about me. Chemo-brain and chemical-induced menopause aren't a good match...aye yae yae, good thing I have 3 guys in my house that love me a lot! Well, that's all for now...take care.
Although I'm half-way through with my chemo, I feel like everything is hitting me at once. Maybe I've suppressed some of my feelings, but I just had a pity party this time around. I want my hair back, I'm tired of cancer, of being the "family with cancer", of just not being normal. My sister put it this way, "Get used to your new normal". Well, I want the old normal back. I guess we'll never have the old normal. After getting diagnosed with cancer and dealing with it, going through the treatments and living with the scars of it, life will never be like it used to be. I know that we'll get through this, I'm just so ready for it to be over.
It's ok for me to feel like this, it's got to be...dealing with all the emotions is just exhausting and I wish I didn't have to process all of this. I need to though, to work through it and understand how I can be a better person because of it. I do know for a fact that so many people care for us, are praying for us and that we've got great friends, family and neighbors. Also, it could be a lot worse. Dave and I often remind ourselves, although our situation is not "normal", we're fortunate in that either of our cancers could have been so much worse. There are so many people that aren't as lucky as we are, to have insurance, a company that supports and believes in us and cares about us, to have doctors that are awesome available to us, that we're going to be SURVIVORS and that we're making it through our treatments rather unscathed.
I still don't know how Dave made it through the chemo that he went through. I get a fraction of the amount he'd receive and I feel like crap. I know he had some rough times, but really, I don't know how he made it through. I just truly hope and pray that a cure for cancer can be found during our lifetime that won't require chemo. Chemo just plain stinks...I wouldn't wish it on anybody...ever.
So, I guess getting this stuff "out on the table" is good for the soul. I know I'm on the upswing and look forward to the days that I don't have "tummy troubles". I look forward to feeling good again and have my wits about me. Chemo-brain and chemical-induced menopause aren't a good match...aye yae yae, good thing I have 3 guys in my house that love me a lot! Well, that's all for now...take care.
Thursday, June 4, 2009
Short and sweet
Just wanted to let you know that the Claritin doesn't work on me. Last night, about an hour after I finished my other post, my jaw, sinuses, back, ribs, arms, just about any bone I have, started to hurt. Like Dave said this morning though, at least we know the Neulasta is working! I will keep trying the Claritin, but I'm also using the Lortab...whatever it takes. That's it for now!
Wednesday, June 3, 2009
Half-way Through, So Far, So Good
Well, yesterday's infusion went smoothly and so far, I'm feeling alright. It's hard to say if I'm good or bad, because, I'm pumped full of chemo, I'm a little "off", but right now, I'm doing fine. I've tried the ginger that everyone is suggesting nowadays, but, to be honest, I don't know how much of a difference that makes. Dave has helped me get a "cocktail" of anti-nausea meds so I'm not overdoing anything, but it seems to be just enough to help me get by. Suffice it to say, my regime is a lot less than what he went through, but he is certainly more sympathetic than most husbands ever could be.
Something else that is different this time, is that I received a call from the Breast Consultant at the hospital who recommended I take Claritin, to help with the bone pain associated with the Neulasta injection. It's really early right now to tell if it's helping or not, since I just had the Neulasta injection today at 1:00 pm, but, so far, so good. So, we'll see if there is some merit in taking Claritin. It helps with my seasonal allergies too! Two-fer one!
We're all hanging in there though, and I'll be glad to get to feeling normal again (by next week). We have the boys going to a Summer Day Camp this week which is so helpful. They are really enjoying it and it's giving me time to recuperate and have some peace and quiet. So, I think I will wrap up this entry about now. Sorry I don't have more to say, but, sometimes it's just good to get by and not say too much, you know?
Something else that is different this time, is that I received a call from the Breast Consultant at the hospital who recommended I take Claritin, to help with the bone pain associated with the Neulasta injection. It's really early right now to tell if it's helping or not, since I just had the Neulasta injection today at 1:00 pm, but, so far, so good. So, we'll see if there is some merit in taking Claritin. It helps with my seasonal allergies too! Two-fer one!
We're all hanging in there though, and I'll be glad to get to feeling normal again (by next week). We have the boys going to a Summer Day Camp this week which is so helpful. They are really enjoying it and it's giving me time to recuperate and have some peace and quiet. So, I think I will wrap up this entry about now. Sorry I don't have more to say, but, sometimes it's just good to get by and not say too much, you know?
Monday, June 1, 2009
Getting Ready for Round 3
Well, we're back from our vacation to Hilton Head and I'm going in tomorrow morning for Round 3 of my chemo. It was sooooo nice to get out of town, relax, enjoy the beach, the waves, decent weather and just have fun. Dave's whole family was there (minus Zach who is in the Navy), but it was just so nice to be with the family, have a good time and forget about all the cancer "stuff" that we've been going through for almost a year now. Our family and one of Dave's sisters and her family stayed at the Hilton Head Disney Resort...we love it there, lots to do, fun pool, neat activities and just plain ol' Disney fun. His parents and other 2 sisters and their families stayed across the highway in Palmetto Dunes (on the beach) so we were able to enjoy the best of both worlds. We cooked out, went out, played at the beach, played at the pool, played ping pong, went crabbing and just had a great time. OK, so now the vacation is over and back to reality...
I'm ready for tomorrow and to be able to officially say, "I'm 1/2 way through"...it'll be like I'll be on the downhill side of chemo. It just stinks that you get to feeling good, almost normal, and then you go in and they make you feel crappy all over again. One thing for sure, I'm having A LOT more hot flashes. I guess that means the chemo is working in that it is slowing down or stopping my estrogen and progesterone production since that is what the cancer feeds off of. So, yes, I'm going into early menopause...oh well, it could be a lot worse, you know? Another plus, I don't have to shave my legs this summer! I didn't even take a razor on vacation! It was a snap getting ready too, no hair products, no blow dryer or curling iron, just throw a scarf on and I am good to go...got to keep looking for the silver lining in all this, you know.
So, I know this is short, but really, this is all I have for now. I'm sure I'll be doing another post to keep everyone up to date on how things are going. Thank you for your continued prayers and support!
I'm ready for tomorrow and to be able to officially say, "I'm 1/2 way through"...it'll be like I'll be on the downhill side of chemo. It just stinks that you get to feeling good, almost normal, and then you go in and they make you feel crappy all over again. One thing for sure, I'm having A LOT more hot flashes. I guess that means the chemo is working in that it is slowing down or stopping my estrogen and progesterone production since that is what the cancer feeds off of. So, yes, I'm going into early menopause...oh well, it could be a lot worse, you know? Another plus, I don't have to shave my legs this summer! I didn't even take a razor on vacation! It was a snap getting ready too, no hair products, no blow dryer or curling iron, just throw a scarf on and I am good to go...got to keep looking for the silver lining in all this, you know.
So, I know this is short, but really, this is all I have for now. I'm sure I'll be doing another post to keep everyone up to date on how things are going. Thank you for your continued prayers and support!
Wednesday, May 20, 2009
Feeling Great and Ready for A Much Needed Vacation!
So, I finally feel like myself again after my 2nd round of chemo. My tongue isn't swollen! It was for about 4 days...weird side effect, I know. I think of this 2nd round, my worst day by far was last Friday, when I slept, ALOT. Too much because then I had a hard time sleeping through the night. Live and learn, next time I won't take soooo many naps in one day!
Today is the last day of school for my boys. Kyle woke up being very, very excited. I would expect that out of him. Bryce, on the other hand, was a bit teary. He said he's going to miss his teacher so much and that she's the nicest teacher he's ever had. He has had wonderful teacher and I think we were extra blessed for him to have her this year, especially. She super enthusiastic, fun, does a great job with the whole class and she's just a real sweetie. I think the fact that she has an effervescent personality helps and she's one of those teachers that "all the kids hope they get". So, I understand him being a bit sad this morning. Hopefully he'll enjoy his last day and not cry it away! (I think too that this teacher will be the one that Bryce will remember having a crush on! Sweet, huh?)
So, I'm off to start packing and getting things ready for our trip. We're heading to Hilton Head Island's Disney Resort and can't wait to get there. The whole family is so very excited! We love everything Disney and decided to join the Disney Vacation Club back in 2003. They have their resorts on Disney property that we can use our "points" for, and then they have 2 Disney Resorts off property, Vero Beach and Hilton Head. We've stayed there a few times in the past and really enjoyed it. There's activities for the kids, adults, seems like you are at Disney even though you aren't. They have a Disney Beach house with a pool and cabanas and little snack type restaurant, so you don't have a care in the world. Just relax, listen to the waves, read a good book, enjoy the ocean....sounds like we're ready, huh? Being that we had to cancel our Disney Cruise last October (when Dave was getting chemo), we're more ready than ever for this trip!
You probably won't be getting an update while we're away, so, thanks again for the prayers, encouragement and continued support. My 3rd chemo round will be the Tuesday after we get back, but I'm NOT going to think about that while I'm on vacation, nope, I'm not going to let my mind go there! Take care and Happy Summer to Everyone!
Today is the last day of school for my boys. Kyle woke up being very, very excited. I would expect that out of him. Bryce, on the other hand, was a bit teary. He said he's going to miss his teacher so much and that she's the nicest teacher he's ever had. He has had wonderful teacher and I think we were extra blessed for him to have her this year, especially. She super enthusiastic, fun, does a great job with the whole class and she's just a real sweetie. I think the fact that she has an effervescent personality helps and she's one of those teachers that "all the kids hope they get". So, I understand him being a bit sad this morning. Hopefully he'll enjoy his last day and not cry it away! (I think too that this teacher will be the one that Bryce will remember having a crush on! Sweet, huh?)
So, I'm off to start packing and getting things ready for our trip. We're heading to Hilton Head Island's Disney Resort and can't wait to get there. The whole family is so very excited! We love everything Disney and decided to join the Disney Vacation Club back in 2003. They have their resorts on Disney property that we can use our "points" for, and then they have 2 Disney Resorts off property, Vero Beach and Hilton Head. We've stayed there a few times in the past and really enjoyed it. There's activities for the kids, adults, seems like you are at Disney even though you aren't. They have a Disney Beach house with a pool and cabanas and little snack type restaurant, so you don't have a care in the world. Just relax, listen to the waves, read a good book, enjoy the ocean....sounds like we're ready, huh? Being that we had to cancel our Disney Cruise last October (when Dave was getting chemo), we're more ready than ever for this trip!
You probably won't be getting an update while we're away, so, thanks again for the prayers, encouragement and continued support. My 3rd chemo round will be the Tuesday after we get back, but I'm NOT going to think about that while I'm on vacation, nope, I'm not going to let my mind go there! Take care and Happy Summer to Everyone!
Saturday, May 16, 2009
Hanging in there...one day at a time
So, it's been 4 days since chemo and all I can say is "UGH". You just never know what to expect, each day is different, different feelings, different sensations, different tastes...you just can't plan ahead during this time. At least I have one cycle behind me, so I have a glimpse of what to expect, which means tomorrow is when I'll feel like I've been hit by a bus.
I'm trying to lay off the pain meds and anti-nausea meds right now. I'm experiencing more neuropathy sensations than bone pain and the pain meds just make you constipated. Sorry, but that's the truth. Chemo just isn't any fun and I hope I can grin and bear it and get through the next 4 rounds without incident. So far, I am managing alright, except yesterday threw me for a loop. I was sooooo tired from the meds that I napped on and off all day long. I even went up to my bedroom at 7:30 last night. Not good if you're planning on getting a good night's sleep. So, today I may allow myself one nap after lunch, and not for very long. I like to sleep at night and not be tossing and turning. Now tomorrow, if my white counts do tank like they did last time, I'll take the pain meds and get a good nap, that seems to have helped me tremendously last time.
I can't believe the kids only have 3 more days of school. This year has flown (too fast) with everything Dave and I have had going on. It's almost not fair in that I wasn't able to participate with the kids' classes like I'm used to and I was just glad to have them be at school so Dave and I could deal with our doctor's appointments, surgeries, treatments, etc. You know, it's like a bad dream and it's just not ending. I think right now I'm just exhausted of dealing with cancer. I was ready to be done with Dave's ordeal when we got the "surprise, you have breast cancer" diagnosis. It's just not right. I know I'm blessed in the support and friends we have, but it does seem like we got the bum rap with both of us being diagnosed 7 months apart. What are the odds?
One more thing worth mentioning...I've heard about the ginger and relief it provides for patients going through chemo! I keep receiving emails or things on Facebook about it...I will discuss this with my oncologist before my next chemo round, although he's already told me he's not one for alternative treatments. So, we'll see what the good doc says. My nausea hasn't been too intolerable (shhh, don't tell Dave), but if the ginger helps, I'll try it!
I'm trying to lay off the pain meds and anti-nausea meds right now. I'm experiencing more neuropathy sensations than bone pain and the pain meds just make you constipated. Sorry, but that's the truth. Chemo just isn't any fun and I hope I can grin and bear it and get through the next 4 rounds without incident. So far, I am managing alright, except yesterday threw me for a loop. I was sooooo tired from the meds that I napped on and off all day long. I even went up to my bedroom at 7:30 last night. Not good if you're planning on getting a good night's sleep. So, today I may allow myself one nap after lunch, and not for very long. I like to sleep at night and not be tossing and turning. Now tomorrow, if my white counts do tank like they did last time, I'll take the pain meds and get a good nap, that seems to have helped me tremendously last time.
I can't believe the kids only have 3 more days of school. This year has flown (too fast) with everything Dave and I have had going on. It's almost not fair in that I wasn't able to participate with the kids' classes like I'm used to and I was just glad to have them be at school so Dave and I could deal with our doctor's appointments, surgeries, treatments, etc. You know, it's like a bad dream and it's just not ending. I think right now I'm just exhausted of dealing with cancer. I was ready to be done with Dave's ordeal when we got the "surprise, you have breast cancer" diagnosis. It's just not right. I know I'm blessed in the support and friends we have, but it does seem like we got the bum rap with both of us being diagnosed 7 months apart. What are the odds?
One more thing worth mentioning...I've heard about the ginger and relief it provides for patients going through chemo! I keep receiving emails or things on Facebook about it...I will discuss this with my oncologist before my next chemo round, although he's already told me he's not one for alternative treatments. So, we'll see what the good doc says. My nausea hasn't been too intolerable (shhh, don't tell Dave), but if the ginger helps, I'll try it!
Tuesday, May 12, 2009
2 Down, 4 to Go
I'm happy to post that I made it through Round #2 without incident. My mom came with me and I think she enjoyed chatting with some of the other chemo patients in the "spa" as my cousin, Ali, describes the infusion room. Anyway, it took about 3 hours and because last time, my tongue swelled some and my lips swelled and were numb, they also gave me Benadryl via infusion. Hopefully this will ward off this odd side effect.
I'm home tonight and Dave is able to go over to Buddy's for the 2nd David Wilcox concert. I really enjoyed this event last night and he needs some time off. Good coffee, good music, makes for a good evening.
So, here's to being a 1/3 of the way through with my chemo. Dave has said it's not fair that mine is so easy, and compared to his, it is a lot easier. I wouldn't wish his treatment on anyone. But at the same time it just stinks that I have to go through this too. I know I'll get through it and it certainly isn't anything we ever could have anticipated, but I know that God has a plan for us and will use it to His glory...so, I hope He uses me in ways I never would have anticipated.
I'm home tonight and Dave is able to go over to Buddy's for the 2nd David Wilcox concert. I really enjoyed this event last night and he needs some time off. Good coffee, good music, makes for a good evening.
So, here's to being a 1/3 of the way through with my chemo. Dave has said it's not fair that mine is so easy, and compared to his, it is a lot easier. I wouldn't wish his treatment on anyone. But at the same time it just stinks that I have to go through this too. I know I'll get through it and it certainly isn't anything we ever could have anticipated, but I know that God has a plan for us and will use it to His glory...so, I hope He uses me in ways I never would have anticipated.
Getting Ready for Chemo Round #2
So, I think all my ducks are in a row for this Round. I made sure I did something fun last night, that always makes it easier to deal with something not so pleasant the next day! I went to a Coffeehouse type concert at our pastor's (Buddy & Jody Hoffman) house last night and really enjoyed the whole evening. David Wilcox performed on guitar, they served awesome coffee and I was able to meet up with some old friends and make some new ones. It was just a neat evening all in all and I'm happy I went!
I'm about to head over and surprise Kyle at his field day (I was able to go to Bryce's yesterday) so he should be excited to see me. I'll just stay for a little while, then head back home. My appointment with the doctor is set for 11:00 AM and my infusion should start somewhere before 12:00 noon.
Thank you for all your prayers, friendship, meals and support. You all are my rock and I know without the friends and family around us helping, this journey would be that much harder.
I'm about to head over and surprise Kyle at his field day (I was able to go to Bryce's yesterday) so he should be excited to see me. I'll just stay for a little while, then head back home. My appointment with the doctor is set for 11:00 AM and my infusion should start somewhere before 12:00 noon.
Thank you for all your prayers, friendship, meals and support. You all are my rock and I know without the friends and family around us helping, this journey would be that much harder.
Saturday, May 9, 2009
What an Amazing Experience - Relay for Life
Well, since we've both been diagnosed and are fighting our own battles against cancer, this Relay for Life is something that I see us being part of every year. It was absolutely amazing. The one we have in Gwinnett Co., GA is one of the 2 largest events in the COUNTRY and we live about 2 miles from where the venue is! I believe they raised $1.8 million dollars at this event alone which is incredible.
Speaking of raising money, I want to take this chance to personally say "Thank You" to our friends and family that contributed in our fundraising efforts. Dave and I raised $1300 in about 2 weeks. Next year, I hope to be on top of things and really be prepared to do this thing right! There were hundreds of tents set up with different groups from around our area. Lots of churches, schools, people supporting friends, whoever wants to form a TEAM can sign up, raise funds and participate.
It was just great to see so many SURVIVORS do the first lap, so many people around us that are affected by cancer. It's sad...you would think with the all that is available to scientists and doctors these days, there'd be a cure for cancer. I hope that before I die, maybe someone in my generation or my children's generation can find a cure. Wouldn't that be amazing? Dave even made a sign and put it on his shirt...the sign said, "My chemo sucked, how about yours?" with a smiley face at the bottom. He just wanted to get the message across that it's horrible that the treatment is worse than the disease.
At 10:00 pm they had a moving experience where they lit luminaries all around the "track" and then everyone carried candles. They started the procession with bagpipes being played and it was just such a solemn, moving experience. To think of loved ones that have died from cancer, or those whose lives have been touched by cancer in some way is just overwhelming. To think that both Dave and I have been diagnosed within 7 months of each other and are going through the battle against cancer on our own is mind boggling. Again, we couldn't make it without those around us, our support team and the prayers of so many that are lifting us up daily.
I'll be going in for my next chemo round this coming Tuesday, but I'm really trying to not get worked up about that right now. We're going to enjoy this weekend, especially with tomorrow being Mother's Day. I hope my boys will bring me breakfast in bed! :-)
Monday, May 4, 2009
It Was a Really Hairy Day
OK, so, not good to start this off with a bad pun, but I have to find the lighter side in this journey. Yes, I took the big step today and had my head shaved. Yesterday was when I started noticing my hair coming out a little too quickly...at least 4 or 5 strands every time I touched my hair. Dave was great, very supportive, got me out of the house to get some fresh air and sunshine (or at least some fresh air, it's been rainy and cloudy here in Georgia lately)....Anyway, it was a good diversion and got my mind off of the inevitable.
So today my hairdresser, Rhonda, was bringing dinner over. I called her originally to see if she could "do the buzz job" sometime this week...then I realized I just had to get it done and over with. She graciously came over with dinner, had a glass of wine with me and then we went out on the porch with Dave's "Just a Trim". OK, so maybe it would have been better for this to have been done at her salon, but after I had a big clump of hair come out this afternoon, I just couldn't wait.
I've posted a photo on my Facebook page (since I only know how to take pictures with my iPhone and put them on Facebook), so you'll have to wait until Dave gets home and can take some pictures with the camera to post here on the blog. I do like my wigs, but to be completely honest, the caps and hats are much more comfortable.
So, all in all I'm glad this step is over. It was very hard emotionally yesterday, just knowing that the time was near to get the hair buzzing over with. I do think it's so much harder for women because we really do identify ourselves with our looks and our hair is a major part of that. I think this whole experience is good for me to really get to know myself and take time to be reflective. I don't stop long enough to do this and now I'm being forced to. I know that what really matters is what's in the inside and that is what makes us who we really are, so, I hope that through this journey, I'll be a stronger person, more sure of who I am and more focused on what really does matter in life.
I'm going to close for now, I go in tomorrow to get labs drawn and then I'll just be enjoying the rest of my "good week". Kyle turns 8 officially on Thursday (he had a great time at his party this past Saturday) and then we're going to Relay for Life on Friday night. Dave and I will be participating in the Survivor's Lap and just enjoy the event...still taking it one day at a time!
So today my hairdresser, Rhonda, was bringing dinner over. I called her originally to see if she could "do the buzz job" sometime this week...then I realized I just had to get it done and over with. She graciously came over with dinner, had a glass of wine with me and then we went out on the porch with Dave's "Just a Trim". OK, so maybe it would have been better for this to have been done at her salon, but after I had a big clump of hair come out this afternoon, I just couldn't wait.
I've posted a photo on my Facebook page (since I only know how to take pictures with my iPhone and put them on Facebook), so you'll have to wait until Dave gets home and can take some pictures with the camera to post here on the blog. I do like my wigs, but to be completely honest, the caps and hats are much more comfortable.
So, all in all I'm glad this step is over. It was very hard emotionally yesterday, just knowing that the time was near to get the hair buzzing over with. I do think it's so much harder for women because we really do identify ourselves with our looks and our hair is a major part of that. I think this whole experience is good for me to really get to know myself and take time to be reflective. I don't stop long enough to do this and now I'm being forced to. I know that what really matters is what's in the inside and that is what makes us who we really are, so, I hope that through this journey, I'll be a stronger person, more sure of who I am and more focused on what really does matter in life.
I'm going to close for now, I go in tomorrow to get labs drawn and then I'll just be enjoying the rest of my "good week". Kyle turns 8 officially on Thursday (he had a great time at his party this past Saturday) and then we're going to Relay for Life on Friday night. Dave and I will be participating in the Survivor's Lap and just enjoy the event...still taking it one day at a time!
Saturday, May 2, 2009
Busy, busy, busy
Just a quick note to say I've been feeling great these last 3 or 4 days...I'd say about I'm about 90% of how I normally would be. Also that translates into staying very busy, which I need to remember to give myself some time to rest.
Kyle, our youngest, turns 8 next Thursday (5/7) so we are having his birthday party today. He's sooooo excited, he was up at 7:30 this morning, making his own banner and trying to hang it over our garage using a little step ladder. I've always said he'll be an event planner of some sort.... It's so sweet to see him so excited though and that is what life is about. Truly enjoying each day and making the most of it, like it's your birthday!
I did get another haircut this past Thursday and Dave will take some nice pictures and we'll post them a little bit later (when I have some makeup on and look human!) If you are on Facebook, you can check it out on my profile!
Well, off to get lots done, busy day ahead!
Kyle, our youngest, turns 8 next Thursday (5/7) so we are having his birthday party today. He's sooooo excited, he was up at 7:30 this morning, making his own banner and trying to hang it over our garage using a little step ladder. I've always said he'll be an event planner of some sort.... It's so sweet to see him so excited though and that is what life is about. Truly enjoying each day and making the most of it, like it's your birthday!
I did get another haircut this past Thursday and Dave will take some nice pictures and we'll post them a little bit later (when I have some makeup on and look human!) If you are on Facebook, you can check it out on my profile!
Well, off to get lots done, busy day ahead!
Tuesday, April 28, 2009
What a Difference a Few Days can Make
So, from my last post, Sunday was a really, really hard day. Actually, I should make that a 1/2 a day...I literally felt like I had been hit by a truck. Everything hurt, the nausea was back, it was just plain HORRIBLE. Around 11:30 AM though, I took some anti-nausea meds and a Lortab and laid down for a nap. After sleeping for 1 1/2 hours, I felt almost new again. Seriously, it was amazing.
I had energy, I took the boys to get their haircut, went for an ice cream afterwards, made an easy dinner that night, I was just so incredibly thankful my "low" didn't last for very long. Maybe it'll get worse with each treatment (cumulative effect), I guess I'll just have to wait and see.
Yesterday, I felt o.k., not great, not bad, but I did want to put a call into the doctor's office to talk with a nurse. I was concerned about my numb lips and it seemed like my tongue was a tad swollen. I didn't think that was a good sign, so when I spoke with the nurse, they did say they wanted me to come in and see the Nurse PA.
I went in and met with the Nurse, she thought that side effect was a little odd, suggested some Benadryl, no biggie and then they drew my labs. Thank God for the PORT!!! That is saving me so much trauma from the nurses trying to find a good vein that will want to cooperate and relinquish some blood. Anyway, my labs came back fine, white counts were a little low, but nothing to be alarmed over. Whew!
So, I woke up today, Tuesday, and I feel like a new woman! Yippee! I had done so much around the house (stripping and making beds, laundry, sweeping out the garage, dishes, went for a 40 minute walk), I came home and now I'm tired...hmm, think I overdid it just a little...it's good though, feeling better is good.
I went to the "Look Good, Feel Good" class last night which was a lot of fun. The ladies that conducted the class were very knowledgeable and also we got to bring home a "goodie bag" with lots of cosmetics and other fun stuff. It's main sponsor is the American Cancer Society.
Closing on this note, Dave, the boys and I will be participating in the Relay for Life for the first time. Right now I've set a goal of $1000 to raise (the relay is the weekend of May 9th). If you are interested in contributing towards this phenomenal cause, here's a link to My Relay for Life page (http://main.acsevents.org/goto/HollyNovak). And yes, it's tax deductible!
I had energy, I took the boys to get their haircut, went for an ice cream afterwards, made an easy dinner that night, I was just so incredibly thankful my "low" didn't last for very long. Maybe it'll get worse with each treatment (cumulative effect), I guess I'll just have to wait and see.
Yesterday, I felt o.k., not great, not bad, but I did want to put a call into the doctor's office to talk with a nurse. I was concerned about my numb lips and it seemed like my tongue was a tad swollen. I didn't think that was a good sign, so when I spoke with the nurse, they did say they wanted me to come in and see the Nurse PA.
I went in and met with the Nurse, she thought that side effect was a little odd, suggested some Benadryl, no biggie and then they drew my labs. Thank God for the PORT!!! That is saving me so much trauma from the nurses trying to find a good vein that will want to cooperate and relinquish some blood. Anyway, my labs came back fine, white counts were a little low, but nothing to be alarmed over. Whew!
So, I woke up today, Tuesday, and I feel like a new woman! Yippee! I had done so much around the house (stripping and making beds, laundry, sweeping out the garage, dishes, went for a 40 minute walk), I came home and now I'm tired...hmm, think I overdid it just a little...it's good though, feeling better is good.
I went to the "Look Good, Feel Good" class last night which was a lot of fun. The ladies that conducted the class were very knowledgeable and also we got to bring home a "goodie bag" with lots of cosmetics and other fun stuff. It's main sponsor is the American Cancer Society.
Closing on this note, Dave, the boys and I will be participating in the Relay for Life for the first time. Right now I've set a goal of $1000 to raise (the relay is the weekend of May 9th). If you are interested in contributing towards this phenomenal cause, here's a link to My Relay for Life page (http://main.acsevents.org/goto/HollyNovak). And yes, it's tax deductible!
Sunday, April 26, 2009
Is it Swine Flu or are my counts just dropping?
I woke up this morning, thinking I'd be doing pretty well, hoping that the bone pain was on its way out...but man, was I wrong. I told Dave I feel like I've been hit by a truck. He said, "Yep, your counts are probably dropping." Bummer, I was so happy that I felt decent the last day or so, despite the funky bone pain. I took only one anti-nausea pill in the past 2 days, but right now, nothing sounds good. A lot of people say that the symptoms you feel post-chemo are like that of the flu, so, ironically, I feel like that right now. Good thing I'm not in Mexico! I know that "this too shall pass" so, I just need to hunker down and ride it out.
Well, I wish I could write more, but right now the words aren't coming to me. More later, hopefully when I am feeling better!
Well, I wish I could write more, but right now the words aren't coming to me. More later, hopefully when I am feeling better!
Friday, April 24, 2009
Feeling some bone pain...
So, I figured I'd do an update to let you know how things are going. As far as nausea goes, it seems to be passing for which I am thankful. Last night though, I started to feel the bone pain that I heard about and took some Lortab before bed. The Neulasta shot which is given to help the white cells come back quicker has different side effects and the bone pain is one of them. Dave didn't experience this (or he said it wasn't too bad, nothing to complain about), but I can feel it. My sister-in-law, Barbara (the oncology nurse), told me that she's seen patients receive the exact same type of treatments and then have very different side effects, it's just up to how your body handles things. She also said that some people's bone pain is so severe that they beg the doctor to not give them the Neulasta injections.
So, I took a walk this morning with a neighbor, and as simple as it sounds, it was just great getting outside, getting fresh air and enjoying this beautiful weather. I know it's going to be a lot hotter this afternoon, so I'm glad to be able to have had a walk already. They say it's good to stay active, so I'm going to try to get out as often as I'm up to it.
Well, I'd like to write more, but, for once, I'm at a loss for words...could be the Lortab, or more chemo brain setting in, but I'm going to sign off for now. As always, thank you for your encouragement and prayers, it's what is carrying us through!
So, I took a walk this morning with a neighbor, and as simple as it sounds, it was just great getting outside, getting fresh air and enjoying this beautiful weather. I know it's going to be a lot hotter this afternoon, so I'm glad to be able to have had a walk already. They say it's good to stay active, so I'm going to try to get out as often as I'm up to it.
Well, I'd like to write more, but, for once, I'm at a loss for words...could be the Lortab, or more chemo brain setting in, but I'm going to sign off for now. As always, thank you for your encouragement and prayers, it's what is carrying us through!
Wednesday, April 22, 2009
The Day After....
Hey - I figured I'd put a quick entry to let you all know I'm hanging in there. I've had a few naps today probably as a result of the phenergan last night. I've had a bit of nausea here and there, nothing too bad (yet)...Hopefully I can get past that with no problems! Ginger Ale is becoming my friend as well as some anti-nausea meds...how did people cope before the good meds? Rhetorical, no need to answer that one!
I'm about to head over for my Neulasta shot (the one that helps the white counts come back up quicker), so I'll need to sign off for now. Sorry this is short and sweet, but I just wanted to let you know I appreciate all the prayers and well wishes from so many of you!
I'm about to head over for my Neulasta shot (the one that helps the white counts come back up quicker), so I'll need to sign off for now. Sorry this is short and sweet, but I just wanted to let you know I appreciate all the prayers and well wishes from so many of you!
Tuesday, April 21, 2009
One Down, Five to Go...
Well, I'm happy to report that I made it through my first chemo round successfully. Wow, it was so much different than what we went through with Dave, and for that I am so grateful. I think my doctor feels we need "re-program" us for my chemo regime since it is so different from Dave's. That's ok, I'll take the "easier treatment" any day!
I chronicled this on my Facebook account which was fun, it's just hard to type on an iPhone...I met with the doctor when I got there, he checked my lab results to be sure I was ok to receive the chemo and then I went back to the "Spa Room" for them to access my port. Fortunately, my doctor prescribed a numbing cream to put on the port a few hours before the injection, so no pain! Dave wasn't given this (I think he's jealous!) but I did let him borrow it last Friday when he had his port flushed.
So, they gave me some pre-chemo saline and anti-nausea meds via the port, then they hooked up the Cytoxan bag. Each bag of chemo takes about an hour, but the whole process took about 4 1/2 hours (from checking in to checking out). After the Cytoxan was done, they gave me the Taxotere. This one they infused a little slower at first, just in case I would have some type of reaction. Other than turning a little red (which actually was from the steroids I've taken the day and a half to prevent fluid retention), I had no complaints or problems. I think that if I'll have the nausea problems and such, that will start up in the next day or two, but I'll be taking the anti-nausea meds on schedule. My counts will probably start dropping by the weekend to early next week, so I'll be hibernating some to stay away from germy people...goes with the treatment!
With all this being said, I'm glad to have my first treatment down, my next Round should be May 12th (Tuesday will be my chemo day)...hopefully all will go well between now and then. I'll go in tomorrow for a Neulasta shot (to rebuild the white cell counts) and then the following 2 Tuesdays for Lab Draws to check my levels. I'll keep you posted.
Thank You for your prayers, I know God is taking us through this, one day at a time.
I chronicled this on my Facebook account which was fun, it's just hard to type on an iPhone...I met with the doctor when I got there, he checked my lab results to be sure I was ok to receive the chemo and then I went back to the "Spa Room" for them to access my port. Fortunately, my doctor prescribed a numbing cream to put on the port a few hours before the injection, so no pain! Dave wasn't given this (I think he's jealous!) but I did let him borrow it last Friday when he had his port flushed.
So, they gave me some pre-chemo saline and anti-nausea meds via the port, then they hooked up the Cytoxan bag. Each bag of chemo takes about an hour, but the whole process took about 4 1/2 hours (from checking in to checking out). After the Cytoxan was done, they gave me the Taxotere. This one they infused a little slower at first, just in case I would have some type of reaction. Other than turning a little red (which actually was from the steroids I've taken the day and a half to prevent fluid retention), I had no complaints or problems. I think that if I'll have the nausea problems and such, that will start up in the next day or two, but I'll be taking the anti-nausea meds on schedule. My counts will probably start dropping by the weekend to early next week, so I'll be hibernating some to stay away from germy people...goes with the treatment!
With all this being said, I'm glad to have my first treatment down, my next Round should be May 12th (Tuesday will be my chemo day)...hopefully all will go well between now and then. I'll go in tomorrow for a Neulasta shot (to rebuild the white cell counts) and then the following 2 Tuesdays for Lab Draws to check my levels. I'll keep you posted.
Thank You for your prayers, I know God is taking us through this, one day at a time.
Monday, April 20, 2009
Day Before Chemo....
So, I'll start my chemo Tuesday, 4/21/09 (around 1:00 pm) in the doctor's office infusion center. I guess since the port has been placed in (last Tuesday), besides getting my hair cut, not too much has happened, hence the silence on the blog. I know from Dave's doing his blog, no news is good news. We had an enjoyable, quiet, sweet weekend and for that I am grateful.
I think the main thing I'd like to stay before I start my treatment, is I just wanted to tell you, my friends, that I am so incredibly blessed with the support we have received. I put a post up around Thanksgiving on Dave's blog, and I still truly mean it. My faith in "people" has been restored. Don't get me wrong, I stand firm in my faith in God, my life is His, I am His child, but before our journey started last July, sometimes I just wondered how much other people could and do care for others. Well, I know for a fact, having lived it and am still living it, that people never cease to amaze me. I have so many stories to tell that will touch your heart and make you shed some tears, but that's not the purpose of today's entry either, I just wanted to say, "Thank You" to so many of our friends, family and people who have truly lifted us up, in prayer, in caring, in words, deeds, you name it, we've seen it.
I was able to go out for my walk this morning which is something I really have come to cherish. I usually walk, plugged into my iPhone, taking time to breath deep and enjoy the Creation around me. Today was so beautiful too, not too humid, cool, just the right temperature. I needed this walk to talk to myself, to God and really get geared up for the chemo. I've been scared, to be completely honest, only because I have never had such a toxic chemical put into my veins. It broke my heart to see Dave go through his Intensive Chemo like he did and he handled it like a champ, even on the very few "dark" days that he had. I know for a fact, that without the prayers that were being lifted up on our behalf, I don't know how I could have made it through all that. I don't know exactly how I'm going to react, so I think the anxiety I've had, has been more from my personal journey of the unknown. I'll get through it, I'm sure of that, and hopefully it won't be as hard on my system as it was on Dave's (I know for a fact I couldn't have handled the dosage he did)....but again, we'll see how I do, and either Dave or I will keep you posted!
So, I've made it through my first day of pre-chemo meds, a steroid, that is meant to help me not retain fluid from one of the chemo's I'll be receiving. So far, so good, my typing has been a little off and Dave is already telling me my "chemo brain" is kicking in...not good, since I don't get the chemo until tomorrow...yeah, statistics say that 80% of women 45 and over go into menopause because of this type of chemo to treat breast cancer...gotta find the silver linings, you know? I'm looking for them all over the place!
Once again, I can't thank you all enough for the kind words, the prayers, the actual physical helps you provide...meals, helping with Bryce and Kyle, I could go on and on...you, my friends, are awesome!
I think the main thing I'd like to stay before I start my treatment, is I just wanted to tell you, my friends, that I am so incredibly blessed with the support we have received. I put a post up around Thanksgiving on Dave's blog, and I still truly mean it. My faith in "people" has been restored. Don't get me wrong, I stand firm in my faith in God, my life is His, I am His child, but before our journey started last July, sometimes I just wondered how much other people could and do care for others. Well, I know for a fact, having lived it and am still living it, that people never cease to amaze me. I have so many stories to tell that will touch your heart and make you shed some tears, but that's not the purpose of today's entry either, I just wanted to say, "Thank You" to so many of our friends, family and people who have truly lifted us up, in prayer, in caring, in words, deeds, you name it, we've seen it.
I was able to go out for my walk this morning which is something I really have come to cherish. I usually walk, plugged into my iPhone, taking time to breath deep and enjoy the Creation around me. Today was so beautiful too, not too humid, cool, just the right temperature. I needed this walk to talk to myself, to God and really get geared up for the chemo. I've been scared, to be completely honest, only because I have never had such a toxic chemical put into my veins. It broke my heart to see Dave go through his Intensive Chemo like he did and he handled it like a champ, even on the very few "dark" days that he had. I know for a fact, that without the prayers that were being lifted up on our behalf, I don't know how I could have made it through all that. I don't know exactly how I'm going to react, so I think the anxiety I've had, has been more from my personal journey of the unknown. I'll get through it, I'm sure of that, and hopefully it won't be as hard on my system as it was on Dave's (I know for a fact I couldn't have handled the dosage he did)....but again, we'll see how I do, and either Dave or I will keep you posted!
So, I've made it through my first day of pre-chemo meds, a steroid, that is meant to help me not retain fluid from one of the chemo's I'll be receiving. So far, so good, my typing has been a little off and Dave is already telling me my "chemo brain" is kicking in...not good, since I don't get the chemo until tomorrow...yeah, statistics say that 80% of women 45 and over go into menopause because of this type of chemo to treat breast cancer...gotta find the silver linings, you know? I'm looking for them all over the place!
Once again, I can't thank you all enough for the kind words, the prayers, the actual physical helps you provide...meals, helping with Bryce and Kyle, I could go on and on...you, my friends, are awesome!
Wednesday, April 15, 2009
No Big Hairy Deal!
Hi folks. Holly got her hair cut a bit shorter today and said she wouldn't mind if I shared some pictures. She still might get it cut one more time before she (eventually) gets it all shaved. The nice thing is that this gives her a chance to experiment with different styles without really taking any style risks.
Please let her know you like it (or bite your tongue)! I think she looks great!
Pic1 (click to enlarge)
Pic2 (click to enlarge)Tuesday, April 14, 2009
The Port is in, Thank God!
What a day...ugh! I was told to be at the Day Surgery at 9:30 a.m.(for Pre-op) for an 11:30 a.m. procedure. I got there, filled out the paperwork, was taken to the back and put in a gown. Everything seemed to be going alright, but then, the wait really started. It didn't help matters that I had an excruciating headache all morning, probably from caffeine withdrawals and not being able to eat or drink anything after midnight.
Then the nurse came in and was trying to start my I.V. Here we go again with my veins and what a hard stick I am. Oh my, the nurse tried a few times, with Lidocaine (so I wouldn't feel the needle) and couldn't find a vein. She then went and found a friend (who's a surgical nurse) that came and took a few tries. Finally, again, on the top of my left hand, she found one. Success! Both nurses agreed that I did the right thing by choosing to get the port implanted, especially because they have such a hard time getting needles in my veins.
Well, Dr. Martin finally was able to do the procedure at about 2:15. We made it home about 4:45 and boy was I ever glad to be back here. For what was supposed to be a simple procedure, it just turned out to be one of those long days. I'm glad I'm home though and intend on getting some rest...that's it for now!
Then the nurse came in and was trying to start my I.V. Here we go again with my veins and what a hard stick I am. Oh my, the nurse tried a few times, with Lidocaine (so I wouldn't feel the needle) and couldn't find a vein. She then went and found a friend (who's a surgical nurse) that came and took a few tries. Finally, again, on the top of my left hand, she found one. Success! Both nurses agreed that I did the right thing by choosing to get the port implanted, especially because they have such a hard time getting needles in my veins.
Well, Dr. Martin finally was able to do the procedure at about 2:15. We made it home about 4:45 and boy was I ever glad to be back here. For what was supposed to be a simple procedure, it just turned out to be one of those long days. I'm glad I'm home though and intend on getting some rest...that's it for now!
Monday, April 13, 2009
Chemo Training 101
Well, I went to meet with the nurse today about my upcoming chemo, and I did learn a few things...I'm surprised Dave didn't go through something like this, it would have been helpful. I did learn a few new things, remembered a lot of what Dave went through and also realized that dealing with breast cancer chemo is different than sarcoma chemo. Hormones are definitely involved with mine (it can actually put you into menopause, good riddance!) I'll be receiving two types of chemo: Taxotere and Cytoxan...different from the kind Dave received, hopefully they won't be too hard on my system. I guess I'll just have to see how it goes.
Anyway, I was finished up with the nurse, talking with the gal that does the"benefits" (insurance billing) and then the power goes out. Have you ever been in an Oncologist's office when there's no power? All I can say is thank goodness all those patients receiving their chemo had battery backups on their pumps.
The power stayed off for about a total of an hour...during which I fumbled down the dark hallway to my surgeon's office to sign consent forms for my port placement. Fortunately, by the time the surgeon came in to see me, the lights came back on...they scheduled me for my port placement for tomorrow morning, so that will be another thing off my check list.
We picked out a wig this past Saturday which was fun. Dave and the boys came with me to help make the decision. It's about my length and actually a slight tad darker than my color now. We liked it though and the contrast looked good. I'm also interested in finding some scarves and hats (with material) for the summer. Like my cousin said, at least I won't have to worry about shaving during the summer months! Got to find the silver linings anywhere I can! Actually, speaking of silver linings, we discovered our Aflac policy pays towards "prosthesis" which a wig qualifies as...so that was something good to discover. That Aflac policy has been awesome and I highly recommend it...and this was not a paid endorsement!
I do plan on getting my hair cut short this Wednesday, something I haven't done in about 20 years. I figured there's no better time than now, it'll all be coming out anyway, so I may as well see what I look like with short hair...
So, that's all the news for now. Hopefully we'll get pictures on here soon to make this a little more "entertaining"...Dave promised he'd help me with that so...we shall see!
Anyway, I was finished up with the nurse, talking with the gal that does the"benefits" (insurance billing) and then the power goes out. Have you ever been in an Oncologist's office when there's no power? All I can say is thank goodness all those patients receiving their chemo had battery backups on their pumps.
The power stayed off for about a total of an hour...during which I fumbled down the dark hallway to my surgeon's office to sign consent forms for my port placement. Fortunately, by the time the surgeon came in to see me, the lights came back on...they scheduled me for my port placement for tomorrow morning, so that will be another thing off my check list.
We picked out a wig this past Saturday which was fun. Dave and the boys came with me to help make the decision. It's about my length and actually a slight tad darker than my color now. We liked it though and the contrast looked good. I'm also interested in finding some scarves and hats (with material) for the summer. Like my cousin said, at least I won't have to worry about shaving during the summer months! Got to find the silver linings anywhere I can! Actually, speaking of silver linings, we discovered our Aflac policy pays towards "prosthesis" which a wig qualifies as...so that was something good to discover. That Aflac policy has been awesome and I highly recommend it...and this was not a paid endorsement!
I do plan on getting my hair cut short this Wednesday, something I haven't done in about 20 years. I figured there's no better time than now, it'll all be coming out anyway, so I may as well see what I look like with short hair...
So, that's all the news for now. Hopefully we'll get pictures on here soon to make this a little more "entertaining"...Dave promised he'd help me with that so...we shall see!
Tuesday, April 7, 2009
Met with Doctor, Getting chemo...
Yes, I'm going to be getting chemo...after going over all the test results with Dr. Landis, my oncologist, we decided that it will be in my best interest to have chemo. Do I want to? Heck no, but, as he said, I'm young, I have 2 young sons and I don't want this cancer to recur. My test results were smack-dab right in the intermediate range, so, I really could have gone either way...but even Dave's oncologist said, "You're young, it was already starting to spread into the lymph nodes, you should probably opt for chemo".
So, next week I'm going to meet with Dr. Landis' nurse for "chemo training". Hmm, I think with what we went through with Dave, I'm trained, but, I may learn something new, so, I'll go! I also will be getting a port placed next week since they have such a hard time finding my veins.
My first chemo round is scheduled for April 21st. They said it'll take about 2 hours and that'll be it. The next day I'll get the Neulasta shot (to help build up my white counts sooner)...and then I'll go back every 3 weeks. I'll have a total of 6 rounds of chemo. Looking at everything we went through with Dave's intensive chemo, mine seems like it'll be "easy". I know it won't, but at least I'll be home and hopefully not have the side effects like Dave went through (Neutropenic fever, low blood counts, etc.). Yes, I will lose my hair...I'm really not looking forward to that...my cousin said she'd send me her scarves!!! Hey, Ali, I'll take you up on that now! ;-) I may get a short hair cut at first, and then when it does start to come out, I'll get the gumption to shave it off...yikes...
After the chemo is all done, I'll then have radiation (33 treatments - 5 times per week for 6 1/2 weeks) and then be on the Tamoxifen for 5 years...that should do it for my treatment plan. You know, it stinks, but we'll get through it. I see where Dave is now and know that if he can get through it, so can I.
I'm in the "I can't believe this is happening to me" phase, so, thank you for your encouragement, your prayers, your friendship and support.
So, next week I'm going to meet with Dr. Landis' nurse for "chemo training". Hmm, I think with what we went through with Dave, I'm trained, but, I may learn something new, so, I'll go! I also will be getting a port placed next week since they have such a hard time finding my veins.
My first chemo round is scheduled for April 21st. They said it'll take about 2 hours and that'll be it. The next day I'll get the Neulasta shot (to help build up my white counts sooner)...and then I'll go back every 3 weeks. I'll have a total of 6 rounds of chemo. Looking at everything we went through with Dave's intensive chemo, mine seems like it'll be "easy". I know it won't, but at least I'll be home and hopefully not have the side effects like Dave went through (Neutropenic fever, low blood counts, etc.). Yes, I will lose my hair...I'm really not looking forward to that...my cousin said she'd send me her scarves!!! Hey, Ali, I'll take you up on that now! ;-) I may get a short hair cut at first, and then when it does start to come out, I'll get the gumption to shave it off...yikes...
After the chemo is all done, I'll then have radiation (33 treatments - 5 times per week for 6 1/2 weeks) and then be on the Tamoxifen for 5 years...that should do it for my treatment plan. You know, it stinks, but we'll get through it. I see where Dave is now and know that if he can get through it, so can I.
I'm in the "I can't believe this is happening to me" phase, so, thank you for your encouragement, your prayers, your friendship and support.
Wednesday, April 1, 2009
Scans are all done, and the waiting continues...
Well, I was up at out the door at 9:15 AM today to go in for my day of scans. I get to the hospital on time, and they are running a little late...no biggie, I'm ready to be there the whole day.
My first stop was in the Nuclear Medicine area to get injected with some Nuclear contrast. This needs to be in my system for 3 hours before they do my bone scan. Of course, they had a hard time finding a vein for my IV, so this time they got me in the top of my left hand (ouch)...oh well, I just looked the other way and got stuck...no reason to fight it.
After I got that done, I had my Head and Neck MRI done. OK, you probably know by now that Dave had a brain tumor just over 8 years ago. He's had MRI's on his head numerous times and having experienced one today for my first time, gives me a new respect for what he goes through. Thank goodness I'm not claustrophobic, but I think that was my least favorite test of the day. I just really don't like loud, banging noises that last anywhere from 30 seconds to 4 minutes, not fun...but again, it was just a one-time test.
Next I went over for a CT scan of my chest, abdomen and pelvis. This wasn't too bad, it's the donut shaped thing that they moved you back and forth through, telling you to hold your breath at various times. Again, not too bad, the room was really cold and it did hurt quite a bit when they pushed the contrast through my IV in my hand...at least they took out the needle after this procedure was finished. Good riddance.
After I was done with the test I had some time to go get some lunch and run a few errands. I still needed to wait about 1 1/2 hours before the bone scan, so it was nice to take a break. When I came back to the hospital, I waited for just a little while and then they got me in. This test wasn't too bad, kind of a combination of the MRI and CT scan...they showed me the pictures when they were finished which was pretty cool. The technician didn't want to tell me about my scoliosis, but I told him it was o.k., I knew about it from a long time ago...pretty wild seeing your skeleton, crooked and all! He did call the Radiologist that took a quick look and from what they could tell me, nothing looked suspicious.
I'll still wait for my appointment next Tuesday to get the final word on all these tests from my Oncologist, Dr. Landis. We definitely thought it was the time to go through all the testing, just in case and I'm glad it's over with. I may not make another post until after my appointment next Tuesday, so until then, thank you for your prayers and words of encouragement.
My first stop was in the Nuclear Medicine area to get injected with some Nuclear contrast. This needs to be in my system for 3 hours before they do my bone scan. Of course, they had a hard time finding a vein for my IV, so this time they got me in the top of my left hand (ouch)...oh well, I just looked the other way and got stuck...no reason to fight it.
After I got that done, I had my Head and Neck MRI done. OK, you probably know by now that Dave had a brain tumor just over 8 years ago. He's had MRI's on his head numerous times and having experienced one today for my first time, gives me a new respect for what he goes through. Thank goodness I'm not claustrophobic, but I think that was my least favorite test of the day. I just really don't like loud, banging noises that last anywhere from 30 seconds to 4 minutes, not fun...but again, it was just a one-time test.
Next I went over for a CT scan of my chest, abdomen and pelvis. This wasn't too bad, it's the donut shaped thing that they moved you back and forth through, telling you to hold your breath at various times. Again, not too bad, the room was really cold and it did hurt quite a bit when they pushed the contrast through my IV in my hand...at least they took out the needle after this procedure was finished. Good riddance.
After I was done with the test I had some time to go get some lunch and run a few errands. I still needed to wait about 1 1/2 hours before the bone scan, so it was nice to take a break. When I came back to the hospital, I waited for just a little while and then they got me in. This test wasn't too bad, kind of a combination of the MRI and CT scan...they showed me the pictures when they were finished which was pretty cool. The technician didn't want to tell me about my scoliosis, but I told him it was o.k., I knew about it from a long time ago...pretty wild seeing your skeleton, crooked and all! He did call the Radiologist that took a quick look and from what they could tell me, nothing looked suspicious.
I'll still wait for my appointment next Tuesday to get the final word on all these tests from my Oncologist, Dr. Landis. We definitely thought it was the time to go through all the testing, just in case and I'm glad it's over with. I may not make another post until after my appointment next Tuesday, so until then, thank you for your prayers and words of encouragement.
Sunday, March 29, 2009
Waiting, waiting, waiting
You know, when you start a blog, you'd think you need to write something every day, but now I understand how you can "be silent" for a while...
It seems like this past week has just CRAWLED by for me. That's o.k. for now, I guess. I'm still not 100% from the Axillary Node Dissection, but, I'm not in as much pain and I can tell I'm slooooooowwwwly getting my range of motion back. Nobody prepared me for this and I kind of wish I had been better informed of what to expect. You'd figure right after surgery that you'd be sore, but then after 2 weeks, you'd think you can reach up to put glasses away in the kitchen cabinet, make the beds without grimacing, get a workout in without feeling soooo sluggish. I sound like my boys when I say, "I want to feel all better NOW!!!"
We did get the great news about Dave's surgery, clean margins, 95% kill ratio, slowly but surely closing this chapter in his fight against cancer. His drains came out Friday so he's getting around pretty well, still using one crutch...if you haven't seen his blog, you need to...my brother, Mike, nicknamed Dave "Zipper Leg" which is quite appropriate for the time being. I think we've been dealing with Dave's cancer for so long, when we got the good news, it was a HUGE relief and weight lifted from our shoulders. If we didn't have my deal going on right now, we'd almost be totally out of the woods, we'll get there, eventually.
One thing happened this week that I thought was pretty cool. The lab that is running the Onco DX test (out in California) called me to let me know they had received the slides, contacted my insurance company, were going to need 7 - 10 business days to run all the tests they run and answer the questions I had, if any. I was really impressed...seems like today whenever you do have a question, you have to jump through so many hoops to get to speak with an individual and they were just awesome to deal with. Impressively, they are the only lab in the world that runs this test, so I think they'll do it right. I read the testimonials on their website and I trust that the doctor is doing the right thing in my case to have this test run. Hopefully, we'll get a definitive answer, one way or another, if I need chemo or not. I truly do not want to go through it, but if it prevents any spreading or recurrence, then sign me up. I hope this test will make it clear as to which path I'll need to take!
I go in this coming Wednesday for all my scans...pray for clean ones. We figured that this is the appropriate time to get all these tests run, just to be sure.
So, that's all for now...I'll be in touch!
It seems like this past week has just CRAWLED by for me. That's o.k. for now, I guess. I'm still not 100% from the Axillary Node Dissection, but, I'm not in as much pain and I can tell I'm slooooooowwwwly getting my range of motion back. Nobody prepared me for this and I kind of wish I had been better informed of what to expect. You'd figure right after surgery that you'd be sore, but then after 2 weeks, you'd think you can reach up to put glasses away in the kitchen cabinet, make the beds without grimacing, get a workout in without feeling soooo sluggish. I sound like my boys when I say, "I want to feel all better NOW!!!"
We did get the great news about Dave's surgery, clean margins, 95% kill ratio, slowly but surely closing this chapter in his fight against cancer. His drains came out Friday so he's getting around pretty well, still using one crutch...if you haven't seen his blog, you need to...my brother, Mike, nicknamed Dave "Zipper Leg" which is quite appropriate for the time being. I think we've been dealing with Dave's cancer for so long, when we got the good news, it was a HUGE relief and weight lifted from our shoulders. If we didn't have my deal going on right now, we'd almost be totally out of the woods, we'll get there, eventually.
One thing happened this week that I thought was pretty cool. The lab that is running the Onco DX test (out in California) called me to let me know they had received the slides, contacted my insurance company, were going to need 7 - 10 business days to run all the tests they run and answer the questions I had, if any. I was really impressed...seems like today whenever you do have a question, you have to jump through so many hoops to get to speak with an individual and they were just awesome to deal with. Impressively, they are the only lab in the world that runs this test, so I think they'll do it right. I read the testimonials on their website and I trust that the doctor is doing the right thing in my case to have this test run. Hopefully, we'll get a definitive answer, one way or another, if I need chemo or not. I truly do not want to go through it, but if it prevents any spreading or recurrence, then sign me up. I hope this test will make it clear as to which path I'll need to take!
I go in this coming Wednesday for all my scans...pray for clean ones. We figured that this is the appropriate time to get all these tests run, just to be sure.
So, that's all for now...I'll be in touch!
Monday, March 23, 2009
Meet the Doctors
Hi Folks, this is Dave, not Holly. She asked me to update everyone with today's events.
Holly met her oncologist today for the first time. His name is Dr. Anthony Landis (see http://www.cancergwinnett.com/meet_the_doctors.htm for more details about him professionally). Based upon what we know today, Holly has Stage II breast cancer. The purpose of today's visit was to find out more about the Pathology of her cancer and the proposed treatment plan.
What we learned today was the following:
- The tumor was positive for stimulation by both estrogen and progesterone. As a result, she will need to take Tamoxifen for the next 5 years. Tamoxifen is thought to block the effects of estrogen on breast cancer cells.
- The HER2 IHC test was borderline, then repeated as a FISH test, but was still inconclusive. The doctor plans to repeat these tests using a different lab this time. It will be at least another week before we get results for this. A positive HER2 test would mean that Holly would need to go through some form of chemotherapy.
- Regardless of the HER2 status, Holly will for sure go through Radiation therapy. She also met her radiation doctor today (Dr. John Gargus) and they discussed doing 33 rounds of treatment (which is about 7 weeks of radiation). It's just a question of will she need chemotherapy before the radiation or just the radiation.
Dr. Landis has the following now planned for Holly:
- As mentioned previously, a different lab will re-run the HER2 tests on her tumor.
- Dr. Landis mentioned something about having a HER MARK test run as well, though I have no information on that test.
- Oncotype DX breast cancer assay -- see http://www.genomichealth.com/OncotypeDX for details.
- A CT Scan, Brain MRI, and Bone Scan have been scheduled for next week.
And now, this is Holly finishing off this entry...I appreciate my sweet, technical-minded, detail-oriented husband so much, he does such a better job explaining this kind of stuff than I do! All in all, I'm very happy with my two new doctors and am glad they'll be close to home (near Gwinnett Medical Center).
Thanks to my neighbor, Joanne for watching Kyle this morning (he stayed home today from school, sick w/ allergy stuff) and to my niece who came down and spent the day to help out. Without this help, it would have been a very difficult day....
Signing off for now...
Holly, Dave (and the boys)
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